As a caregiver, you may need information on legal and financial issues, assistance with care services, or an understanding of benefits and program access. These resources can provide guidance.
Child care resource and referralThis site, with its searchable database, provides Massachusetts residents with information about child care agencies in their communities.
Eldercare locatorSearch for home and community-based services for older adults at this site sponsored by the US Department of Health and Human Services.
National respite locator serviceThis site has a database of local programs that can provide short-term patient care to give caregivers a respite. You can also call 919-490-5577.
Hiring help at home: questions to askThe AARP provides tips on hiring and interviewing people or agencies that provide home health care services. You can also call 888-OUR-AARP (888-687-2277).
Health care proxiesAdvance directives ensure that your loved one's wishes for medical care are followed. Find forms and instructions specific to your state on this site.
See health care proxy information for patients at Dana-Farber/Brigham and Women's Cancer Center
Hospice and Palliative Care Federation of MassachusettsFind Massachusetts hospices and palliative care agencies, as well as documents like advanced directives, health care proxies, and a survey to provide guidance about difficult choices.
Caring ConnectionsIncludes a searchable database for providers of hospice and palliative care, and information for caregivers and professionals about end-of-life care.
Benefits checkupOlder adults and their caregivers can learn if they are eligible for an array of services and benefits programs, including Medicare Extra Help, Eldercare Assistance, and federally funded food programs.
Social Security disability plannerCheck for your loved one's eligibility for Social Security Disability through this site , operated by the Social Security Administration. You can also call 800-772-1213 to get recorded information and conduct some business 24 hours a day.
Family and Medical Leave ActKnow your rights for taking time off work to care for family under the Family and Medical Leave Act. You can also call the helpline at 866-4US-WAGE for a referral to the office that serves your community.
Patient Advocate FoundationThe Foundation provides consultation to people with cancer and other illnesses about employment and insurance matters. Find resources on the site or call 800-532-5274.
Health Insurance Info NetLearn the regulations regarding health insurance coverage in your state. The site provides information on state policies for retaining coverage after you stop working and lists programs available to people without insurance.
MedicareGet information about Medicare from the US Department of Health and Social Services. You can also call 800-633-4227.
Center for Medicare AdvocacyThis easy-to-understand site can provide you with information on Medicare coverage, making appeals and other issues. You can also call 860-456-7790.
Mass resources transportationParatransit, ElderVan and MassHealth Transportation information, including transport to medical appointments.
Road to RecoveryThis American Cancer Society program has volunteer drivers who drive cancer patients to medical appointments. Call 800-ACS-2345 to find out if Road to Recovery is available in your community.
How to deal with long-distance issuesThe AARP provides tips on caregiving from a distance on this helpful site.
Twenty questions for long-distance caregiversIn this booklet, published online by the National Institute of Aging (NIA), caregivers will find useful information on long-distance caregiving.
GetPalliativeCare.orgLearn about palliative care and find programs in your area.
Places to stay near Dana-FarberSee a list of short-term accommodations near the Longwood Medical Area. Dana-Farber/Brigham and Women's Cancer Center patients can learn whether they are eligible for financial assistance for short-term accommodations by calling 617-632-3301.
Hospitality HomesVolunteer hosts open their Boston-area homes to families of hospitalized patients. Guests have a room of their own and access to a bathroom. Many homes are located near public transportation for easy access to Dana-Farber. $25 suggested donation per night.
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