• Resources and Support for Cancer Caregivers

    Websites to Help People Caring for Cancer Patients

    Websites with Practical Help

    As a caregiver, you may need information on legal and financial issues, assistance with care services, or an understanding of benefits and program access. These resources can provide guidance.

    Care services

    Child care resource and referral
    This site, with its searchable database, provides Massachusetts residents with information about child care agencies in their communities.

    Eldercare locator
    Search for home and community-based services for older adults at this site sponsored by the US Department of Health and Human Services.

    National respite locator service
    This site has a database of local programs that can provide short-term patient care to give caregivers a respite. You can also call 919-490-5577.

    Hiring help at home: questions to ask
    The AARP provides tips on hiring and interviewing people or agencies that provide home health care services. You can also call 888-OUR-AARP (888-687-2277).

    Health care proxies
    Advance directives ensure that your loved one's wishes for medical care are followed. Find forms and instructions specific to your state on this site.

    See health care proxy information for patients at Dana-Farber/Brigham and Women's Cancer Center

    Hospice care

    Hospice and Palliative Care Federation of Massachusetts
    Find Massachusetts hospices and palliative care agencies, as well as documents like advanced directives, health care proxies, and a survey to provide guidance about difficult choices.

    Caring Connections
    Includes a searchable database for providers of hospice and palliative care, and information for caregivers and professionals about end-of-life care.

    Income and employment issues

    Benefits checkup
    Older adults and their caregivers can learn if they are eligible for an array of services and benefits programs, including Medicare Extra Help, Eldercare Assistance, and federally funded food programs.

    Social Security disability planner
    Check for your loved one's eligibility for Social Security Disability through this site , operated by the Social Security Administration. You can also call 800-772-1213 to get recorded information and conduct some business 24 hours a day.

    Family and Medical Leave Act
    Know your rights for taking time off work to care for family under the Family and Medical Leave Act. You can also call the helpline at 866-4US-WAGE for a referral to the office that serves your community.

    Patient Advocate Foundation
    The Foundation provides consultation to people with cancer and other illnesses about employment and insurance matters. Find resources on the site or call 800-532-5274.

    Insurance

    Health Insurance Info Net
    Learn the regulations regarding health insurance coverage in your state. The site provides information on state policies for retaining coverage after you stop working and lists programs available to people without insurance.

    Medicare
    Get information about Medicare from the US Department of Health and Social Services. You can also call 800-633-4227.

    Center for Medicare Advocacy
    This easy-to-understand site can provide you with information on Medicare coverage, making appeals and other issues. You can also call 860-456-7790.

    Transportation Services

    Mass resources transportation
    Paratransit, ElderVan and MassHealth Transportation information, including transport to medical appointments.

    Road to Recovery
    This American Cancer Society program has volunteer drivers who drive cancer patients to medical appointments. Call 800-ACS-2345 to find out if Road to Recovery is available in your community.

    Long-distance caregiving

    How to deal with long-distance issues
    The AARP provides tips on caregiving from a distance on this helpful site.

    Twenty questions for long-distance caregivers
    In this booklet, published online by the National Institute of Aging (NIA), caregivers will find useful information on long-distance caregiving.

    Palliative care

    GetPalliativeCare.org
    Learn about palliative care and find programs in your area.

    Short-term accommodations

    Places to stay near Dana-Farber
    See a list of short-term accommodations near the Longwood Medical Area. Dana-Farber/Brigham and Women's Cancer Center patients can learn whether they are eligible for financial assistance for short-term accommodations by calling 617-632-3301.

    Hospitality Homes
    Volunteer hosts open their Boston-area homes to families of hospitalized patients. Guests have a room of their own and access to a bathroom. Many homes are located near public transportation for easy access to Dana-Farber. $25 suggested donation per night.

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