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Just as cancer treatment affects your physical health, it affects the way you feel, think, and do the things you like to do. Besides causing many emotions that may surprise you, the treatment may actually change the way your brain works. Just as you need to take care of your body after treatment, you need to take care of your emotions.
Each person's experience with cancer is different, and the feelings, emotions, and fears that you have are unique as well. The values you grew up with may affect how you think about and deal with cancer. Some people may feel they have to be strong and protect their friends and families. Others seek support from loved ones or other cancer survivors or turn to their faith to help them cope. Some find help from counselors and others outside the family, while others do not feel comfortable with this approach. Whatever you decide, it is important to do what's right for you and not compare yourself to others.
Here are some common feelings other people have had after cancer treatment.
Worrying about the cancer coming back (recurring) is normal, especially during the first year after treatment. This is one of the most common fears people have after cancer treatment. Even years after treatment, this fear may always be in the back of their minds.
For some, the fear is so strong that they no longer enjoy life, sleep well, eat well, or even go to follow-up visits. "If I get it again, what am I going to do?" one woman said. "I never thought I'd make it through the first time." Of course, not everyone reacts this way. As one survivor put it, "[Cancer] is just part of life, and we always have hope."
As time goes by, many survivors report that their fear of cancer coming back becomes less, and they find themselves thinking less often about their cancer. However, even years after treatment, some events can cause you to become worried about your health. These may include:
How do you cope with fear of cancer returning? Here are some ideas that have helped others deal with fear and feel more hopeful:
When you were diagnosed, you may have put certain issues aside for a while, such as concerns about family, work, or finances. Now that treatments are over, these issues may begin to resurface just when you are tired and may feel that there is already too much to handle.
Many cancer survivors also worry that stress may have played a role in their illness. It is important to remember that the exact cause of many cancers is still unknown. No research shows that stress causes cancer, but stress can cause other health problems. Finding ways to reduce or control
Many survivors have found activities like the ones below useful in dealing with cancer and their worries after treatment ends. Ask your doctor, nurse, social worker, or local cancer organization about taking part in activities like these.
Exercise is a known way to reduce stress and feel less tense—whether you've had cancer or not. As one man put it: "I can feel down a little bit, and it is a fine line with depression, but when I walk 45 or 50 minutes in the fresh air, I feel like I can take on the world sometimes." See your doctor before making an exercise plan, and be careful not to overdo it. If you cannot walk, ask about other types of exercise that may be helpful.
Dance or movement
People can act out their feelings about cancer in classes using dramatic and/or dance-style body movements. Other class members talk about the issues the "performer" was trying to express.
Sharing personal stories
Telling and hearing stories about living with cancer can help people learn, solve problems, feel more hopeful, air their concerns, and find meaning in what they've been through.
Music and art
Even people who have never sung, painted, or drawn before have found these activities helpful and fun.
Dana-Farber's Creative Arts Program
After treatment, you may still feel angry, tense, sad, or blue. For most people, these feelings go away or lessen over time. For up to one in four people, though, these emotions can become severe. The painful feelings do not get any better, and they get in the way of daily life. These people may have a medical condition called depression. For some, cancer treatment may have contributed to this problem by changing the way the brain works.
Talk to your doctor. If your doctor finds that you do suffer from depression, he or she may treat it or refer you to other experts. Many survivors get help from therapists who are expert in both depression and helping people recovering from cancer. Your doctor also may give you medicine to help you feel less afraid and tense.
If you have any of the following signs for more than two weeks, talk to your doctor about treatment.
quot;I tell them it is a 'senior moment,' but I notice I have a lot more of them now, and I'm sure [treatment] had something to do with it," one 70-something survivor noted. "Not being able to concentrate the way I used to is the worst effect for me," a younger survivor added. "I worry about how it will affect my work."
Research shows that one in four people with cancer reports memory and attention problems after chemotherapy. More research is needed to learn what causes these changes.
These effects can begin soon after treatment ends, or they may not appear until years later. They do not always go away. If a person is older, it can be hard to tell whether these changes in memory and concentration are a result of treatment or of the aging process. Either way, some feel they just cannot focus as they once did.
Research is just starting to explore who may develop problems with memory and concentration. It seems that people who have had systemic chemotherapy or have had radiation to the head area are at higher risk of having these problems. People who have had high doses of chemotherapy may be particularly affected by memory problems, but even those who have had standard doses have reported memory changes.
Your doctor can help you with memory and concentration problems. Talk with him or her if:
Cancer survivors have found many ways to help improve memory after cancer treatment. See if any of these ideas work for you:
Some body changes are short-term, and others will last forever. Either way, how you look may be a big concern after cancer treatment. People with ostomies after colon or rectal surgery are sometimes afraid to go out. They may feel shame or fear that others will reject them. They may be afraid they will have an "accident" and feel embarrassed. Others do not like people being able to see treatment effects like scars on the head or neck, skin color changes, loss of breasts or limbs, weight gain or loss, and hair loss. Even if your treatment does not "show," your body changes may trouble you. Feelings of anger and grief are natural. You have lost your "old body" and, with it, your sense of self.
Feeling bad about your body can also lower your sex drive, and the loss of or reduction in your sex life can make you feel even worse about yourself. "Mentally, it was strange," one prostate cancer survivor said. "You're worried about your 'man thing.' It may be on the back of your mind ... but it is always there." Women also have this concern. "I felt like I was half of a woman," one ovarian cancer survivor noted.
Changes in the way you look can also be hard for your loved ones—and this can be hard on you. Parents and grandparents often worry about how they look to a child or grandchild. They fear the changes in their body will scare the child or get in the way of their staying close.
How do you cope with body changes? Here are some ideas that have helped others:
Many people find themselves feeling angry about having cancer or about things that have happened to them during their diagnosis or treatment. They may have had a bad experience with a health care provider or with an unsupportive friend or relative.
Hanging on to anger can get in the way of your taking care of yourself, but sometimes anger can energize you to take action to get the care you need. If you find yourself feeling angry, find a way to use that energy to help yourself.
After treatment, you may miss the support you got from your health care team. You may feel as if your safety net has been pulled away and that you get less attention and support from health care providers now that treatment is over. You also may feel that only others who have had cancer can understand your feelings. Feelings like these are normal any time you leave people who mean a lot to you.
It is also normal to feel somewhat cut off from other people—even family and friends—after cancer treatment. Often, friends and family want to help, but they don't know how. Others may be scared of the disease.
What can you do to make yourself feel better during this lonely time? Here are some methods other people have found helpful:
Source: U. S. National Cancer Institute, Facing Forward Series: Life After Cancer