• Pediatric Patient and Family Advisory Council

    Establishing Patient and Family Advisory Councils 

    The Pediatric Patient and Family Advisory Council of Dana-Farber/Children's Hospital Cancer Center is a partnership of patients, family members, and professional caregivers. We are dedicated to improving hospital programs, policies, and the overall quality of cancer care provided to children, teens, and their families while in treatment and afterward.

    Accomplishments

    Since its formation in the spring of 1999, the Council has worked on many initiatives, including:

    • Dana-Farber/Children's Hospital Cancer Center Pediatric Handbook for Patients, Families, and Friends
    • "How to Help" brochure for friends and families of patients transitioning to palliative care
    • Promotion of nutrition services and integrative therapies
    • Guide to billing and insurance
    • Home hydration program
    • Transition off treatment resources
    • General anesthesia for outpatients in the Jimmy Fund Clinic
    • Children's Hospital resource room design and reference materials
    • Emergency room "fast track"
    • Discharge process
    • Speaking engagements at fundraising events and health care conferences.

    Each month, the Council discusses ongoing initiatives and assigns follow-up directives. Members are required to attend the two-hour monthly meetings and to work on issues outside of Council meetings. Parent co-chairs share leadership responsibilities of the Council.

    How to get involved

    If you'd like to speak with one of our Council members, or for more information about getting involved, please call 617-632-4319 or email pfac@dfci.harvard.edu.

    Five to six key administrative staff members serve as voting members of the Councils. Other staff leaders are invited guests and routinely attend meetings.

    Download Pediatric Patient and Family Advisory Council application

    Find out more

    Learn more about Dana-Farber's approach to Establishing Patient- and Family-Centered Care 

    Learn about the Adult Patient and Family Advisory Council 

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