Our staff of compassionate and experienced pediatric specialists includes clinicians and other healthcare providers with expertise in palliative care, symptom management, complementary medicine, and speech-language pathology.
Pediatric palliative care is intended to optimize the quality of life, promote healing, and provide comfort for children with life-threatening illnesses.
The Pediatric Advanced Care Team (PACT) at Dana-Farber/Boston Children's Cancer and Blood Disorders Center is a team of interdisciplinary clinicians with expertise in pediatric palliative care, who add an extra layer of support to the care of children with serious illness and their families.
The PACT team consults with you, your family, and your primary care team to bring together information and guidance needed to make the best health care decisions for your child.
Our services include:
We bring together experts from a wide variety of disciplines to care for your child. Our care team includes:
We consider you and your child to be integral parts of the care team and not simply recipients of care. We work closely with you to customize a plan of care for your child.
Dana-Farber/Boston Children's Pediatric Advanced Care Team has served as a model program for pediatric institutions around the United States. Joanne Wolfe, MD, MPH, our Division Chief and medical director, is nationally recognized for her pediatric palliative care expertise.
Wolfe and other members of the team participate in regional and national efforts to improve care for children with advanced illness.
The Pediatric Advanced Care Team's services include:
PACT members will work closely with your child, family, and primary care team to develop a comprehensive quality-of-life care plan. We do not replace your child's primary care team; rather, we support treatment of the illness and at the same time strive for optimal quality of life.During your consultation, we will evaluate factors such as you child's feelings and health, your family's needs, and the care team's medical plan in order to make the best possible recommendations. Our clinicians can meet with your child and family at the hospital, at one of our outpatient facilities, or at your home..
Our team members want your child and family to make educated decisions. We are available to talk with you and provide educational resources on a variety of topics, including communication and decision-making, pain and symptom management, palliative care, hospice and home care, family dynamics, sibling issues, school interactions, and spiritual concerns.
It's important that your child and family have support both at the hospital and when you return home. We can help identify supportive agencies and community-based organizations. In addition, we can provide emotional and psychosocial support, and help arrange end-of-life care when necessary.
A consultation can be arranged at any time during your child's treatment. Our team is available to provide consultation 24 hours a day.
Our staff of compassionate and experienced pediatric specialists includes clinicians and other healthcare providers with expertise in palliative care, symptom management, complementary medicine, and speech-language pathology. Our team also includes an expert in interfaith spiritual care.
Our clinicians are focused on family-centered care. From your first visit, you'll work with a team of professionals who are committed to supporting your family's physical and emotional needs.
Joanne Wolfe, MD, MPHJoanne Wolfe is Division Chief of Pediatric Palliative Care at Dana-Farber Cancer Institute and Director of Palliative Care at Boston Children’s Hospital. She is the Boston Children’s Harvard Palliative Medicine site director and an Associate Professor at Harvard Medical School. She is board certified in Hospice and Palliative Medicine and Pediatric Hematology/Oncology. Dr. Wolfe is nationally-recognized for her pediatric palliative care expertise; her research focuses on improving care for children with advanced illness.
Richard Goldstein, MDRichard Goldstein is a Pediatric Advanced Care Team attending physician and an Assistant Professor in Pediatrics at Harvard Medical School. He is a general pediatrician with expertise in palliative care, behavioral-developmental pediatrics, and community-based medicine. He is a senior physician at Dana-Farber. Dr. Goldstein oversees the pediatric palliative care curriculum for fellows and residents. His research focuses on sudden, unexpected loss and parental grief.
Christina Ullrich, MD, MPHChristina Ullrich is a Pediatric Advanced Care Team attending physician and Assistant Professor in Pediatrics at Harvard Medical School. She completed fellowships in Pediatric Hematology/Oncology and Pediatric Palliative Care at Boston Children’s Hospital/Dana-Farber Cancer Institute, and is board certified in Hospice and Palliative Medicine and Pediatric Hematology/Oncology. Her research interests include symptom management in children with cancer, with a focus on fatigue. She is also currently investigating the palliative care needs of children who undergo hematopoietic stem cell transplantation.
Emma Jones, MDEmma Jones is a Pediatric Advanced Care Team attending physician and Instructor in Pediatrics at Harvard Medical School. She is board certified in hospice and palliative medicine, pediatric hematology-oncology, and clinical pharmacology. Her areas of interest include acute and chronic pain management in sickle cell disease, comprehensive assessment of pain, and patient and caregiver education.
Janet Duncan, MSN, CPNPJanet Duncan is the founding nurse practitioner for the Pediatric Advanced Care Team, with expertise in pediatric palliative care and hematology/oncology. She focuses on outpatient care, pediatric palliative care education and training.
Rachael Menius, MSN, CPNP-AC, CPONRachael Menius is an acute care pediatric nurse practitioner for the Pediatric Advanced Care Team on the inpatient and outpatient services.
Marsha Joselow, LICSW, MSWMarsha Joselow is a clinical social worker for the Pediatric Advanced Care Team, and is also the Pediatric Social Work Fellowship Director. She follows patients both inpatient and outpatient, and coordinates bereavement care for the Pediatric Advanced Care Team.
Christopher Collura, MD(Pediatric Palliative Care MD Fellow)Chris Collura completed his undergraduate degree in theological studies and medical school at Saint Louis University. He trained in Pediatrics and Neonatal & Perinatal Medicine at Mayo Clinic in Rochester, Minnesota. He is a master’s degree candidate in Bioethics from the University of Minnesota. Following his fellowship with the Pediatric Advanced Care Team, he will join the Department of Pediatric & Adolescent Medicine at Mayo Clinic as a staff neonatologist and pediatric palliative medicine physician. He hopes to focus his future academic efforts in pediatric health care disparities in palliative care and perinatal and pediatric bioethics.
Kevin Madden, MD(Pediatric Palliative Care MD Fellow)Kevin Madden completed his undergraduate degree in Human Biology with a focus on Human Evolutionary Genetics at Stanford University. He graduated from UMDNJ-New Jersey Medical School in 2000. He completed his residency in General Pediatrics and fellowship in Pediatric Critical Care Medicine at Children's Hospital Los Angeles. He has been an attending physician at both Children's Hospital Los Angeles and City of Hope National Medical Center since completing his fellowship in 2010. His academic interests include mindfulness meditation for management of anxiety and depression.
Arielle Eagan, LICSW(Pediatric Palliative Care Social Work Fellow)Arielle Eagan received her Master of Social Work from Boston College, with an individualized, combined concentration in health and children, youth and families. She completed her BA at BC, majoring in human development and applied psychology with a minor in sociology. In her most recent position as an Oncology Clinical Social Worker with Dana-Farber/Brigham and Women’s Cancer Center, Ms. Eagan provided clinical support for patients and families facing life-threatening illness.
Rita FountainRita Fountain is the Practice Coordinator for the Pediatric Advanced Care Team.
Our team is available by page 24 hours a day.
To call the Dana-Farber page operator, dial 617-632-3352 and ask for the clinician by name or the Pediatric Advanced Care Team clinician on call.
To call the Boston Children's Hospital page operator, dial 617-355-6000 and ask for the clinician by name.
For non-urgent matters Monday-Friday, please call 617-632-5042 during regular business hours or email Rita Fountain at firstname.lastname@example.org. If you are unable to reach us at this number or through email, please use the paging instructions above.
Pediatric Advanced Care TeamDana-Farber Cancer Institute450 Brookline Avenue, SW 411Boston, MA 02215
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