Dedicated to Discovery. Committed to Care.

Motivating force

As much as she wants to change the prognosis for patients like herself, O'Hagan believes this kind of collaborative research will have ramifications for diseases beyond the one that has changed her life, including diabetes, stroke, Alzheimer's, and lung and prostate cancers.

"I'm confident this work will give us a greater understanding of how neuroendocrine cells, which are everywhere in the body, function — as well as what happens in the gut," she says. "I hope it will also benefit people who have carcinoid but don't know it. In my case, I wasn't diagnosed for years."

By bestowing research grants; by jetting across the country to confer with scientists and fellow advocates; by providing a website and blog; and by tapping friends to support the foundation (including taking part in the Pan-Massachusetts Challenge bike-a-thon and Boston Marathon® Jimmy Fund Walk), O'Hagan is out to kindle optimism and soothe family members' hurting hearts by working toward improved treatments and, eventually, a cure for carcinoid cancer.

"I don't feel sorry for myself," she says. "I consider myself fortunate to have the life that I do, the family that I've had, and so many wonderful friends. For a long time, I didn't even want to tell people that I had cancer; I didn't want them to look at me differently.

"But the thing is," O'Hagan adds, "I have to get out there and do what I can to make a difference."

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Between a rock and a hard place

Some patients are more fortunate than others: Their neuroendocrine tumors never cause problems or are caught early and removed surgically. Others don’t realize they have cancer in these hormone-making cells until it has spread. Medications can control some patients’ symptoms and prolong life, according to the American Cancer Society, but they aren’t very effective at getting rid of the disease.