GIST (Gastrointestinal Stromal Tumors)
Research Studies
FLAG: Families Learning About GIST
Project FLAG is a study about GIST (gastrointestinal stromal tumors) that may run in families, also known as hereditary GIST. We hope that by looking at the genes of people with GIST, we can learn more about inherited forms of GIST. People who enroll in Project FLAG may also agree to be part of a registry of GIST families. These families may have the option to become part of future studies in hereditary GIST.
The goals of Project FLAG are to:
- Look at the genes that cause GISTs to develop in families
- Study the cancer risk in families with hereditary GIST
- Look at clues that may be related to hereditary GIST, such as non-cancerous skin growths.
You can join Project FLAG if:
- You are 18 years or older
- You have been diagnosed with GIST
What is involved?
- Sign the FLAG consent form
- Complete the FLAG questionnaire
- Provide a blood or saliva sample
- Have your medical records reviewed
You MAY be asked to:
- Speak with a FLAG genetic counselor
- Decide whether to have your sample tested for GIST genes and receive your results
