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Diana Rose

Grateful to be a survivor

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Thump! That is what I felt one night when I rolled over in bed and my wrist bone hit my left breast. I immediately jumped out of bed to further investigate this bulging object. I found a lump the size of a cherry. I told myself not to panic. It can't be cancer; I'm too young and healthy and have no family history.

After several trips to various doctors, a biopsy was scheduled. The nurse practitioner, the gynecologist, the radiologist and the surgeon felt confident that the tumor was benign. So why did I feel anxious and fearful the night before the surgery? I've had a few minor surgeries in the past, but they never bothered me. I couldn't understand my reaction.

The surgery was easy. I was home 90 minutes after I left my house. My body was a little sore, but it wasn't a big deal. I felt better and calmer. I was going to be just fine.

Two days later I called the lab to get the results. They faxed them to me at work, never asking who I was. As I read the report, I felt my heart sinking to the floor even though I had no idea what I was reading. The report was filled with medical terminology. I looked for words such as benign, cancer or malignant. Those words did not appear on the report. I called my sister and brother, both of whom are medical professionals, and read the report to them. All I heard was silence. Then, my brother asked me to read it again. I read aloud the words, "poorly differentiated ductal cell carcinoma." I heard silence again and panic crept into my body. Finally, I asked, "What does that mean?" My brother answered very softly, "You have cancer."

Am I going to die? What do I do now? Will I have chemotherapy? Will I lose my hair? Will I lose my breast?

I was full of unanswered questions and consumed with fear. The unknown scared me. Chemotherapy scared me. Death scared me. I didn't want to die. I was only 31. I wanted to fall in love. I wanted to have kids. I wanted to see Paris. I wanted to live.

I needed to find out if the cancer infiltrated my breast or spread to my lymph nodes. I needed to know my options for treatment. My life suddenly became consumed with doctor visits and medical tests. The hospital began to feel like a second home. I learned about the various forms of treatment and discovered chemotherapy was going to be a necessity because of the size of my tumor. My options were to have a lumpectomy, chemotherapy and radiation or to have a mastectomy and chemotherapy. A lumpectomy would save my breast, but I would have to go through weeks of radiation and live with the fear that the cancer may still be there. If I chose a mastectomy, I could avoid radiation, but I would lose my breast. Neither option appealed to me, but I had to make a decision.

I made a decision to have a mastectomy, so I also met with a plastic surgeon to learn about reconstructive surgical options. I wondered what I would look like when this was all over. Would I still feel like a woman? Would I ever feel beautiful and feminine again? I prayed that I was making the right decision.

I wasn't nervous about the surgery, however. From the moment I was diagnosed with cancer, chemotherapy was what frightened me the most. I kept thinking of the male character in the movie Dying Young. I was going to lose my hair. I was going to feel sick. The possibility that chemotherapy could permanently stop my menstrual cycle scared me the most. Since I was a child, I've dreamed of being a mom.

Fourteen days after my first treatment, I started to lose my long, thick curly hair, which made me depressed. Haven't I been through enough? Now I have to lose my hair? I couldn't wash it. I couldn't brush it. I felt sorry for myself. I lost more hair each day and each day I fell into a deeper depression. I needed to take control, so I decided to shave it off. My friends got together and threw a frozen margarita/head shaving party.

Someday it would grow back and, hopefully, it would grow back straight, I thought. I was never fond of my curly hair and I cursed it my entire life. I am a strong believer that everything happens for a reason, and I knew there must be a reason I got cancer. I hoped cancer was going to be God's way of giving me straight hair. It already made me thin--I lost 15 pounds. In a few months, I would have reconstructive surgery and I would have bigger boobs. I didn't think it was too much to ask: thinness, straight hair and bigger boobs. It was going to be a whole new me.

Five surgeries, four rounds of chemotherapy, and a new full head of curly hair later, I am proud, thrilled and grateful to say I am a survivor. I won my battle with breast cancer. But the war is not over. Breast cancer has a high rate of recurrence. I'm told the magic number is five. Five years of being cancer free before I can be considered "cured." It's a scary thought. What if it does come back? How will I go through it again? I honestly don't think about it every day. I can't. I need to believe. I need to feel it is over and that it isn't coming back. All I can do is hope and pray that in five years, 10 years, 20 years, even 40 years, I can say, "I'm grateful to be a survivor."

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Tissue Banking

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This audiovisual program explains what tissue banking is, why it is so important, and who benefits from it. Our goal is to provide information that might help you decide whether or not to donate your tissue for medical research. read more