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Lynch Syndrome Center Events and Resources for Patients

  • In-Person Events

    LYNKED IN Lynch Syndrome Patient Conference

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  • UPDATE: 2020 Lynch Syndrome Patient Conference Postponed

    We regret to announce that we have made the difficult decision to postpone the 2020 LYNKED IN Patient and Family Conference originally scheduled for March 28, 2020, due to the continued outbreak of COVID-19 (novel coronavirus) around the globe and increasingly here in the United States.

    There is substantial concern that large gatherings and travel have been substantial contributors to this worsening epidemic. With nearly 250 registrants from all over the United States and Canada, plus speakers from Europe, we do not feel that we can safely put on this conference at this time, and for that we are deeply sorry and heartbroken.

    We sincerely apologize for any inconvenience this causes, especially with regard to travel plans. For those who have reserved hotels, we ask that you call to cancel your registration for a full refund. We are committed to rescheduling the conference for the summer or fall of 2020, but do not yet have a specific make-up date. We promise to keep you closely in the loop regarding plans for rescheduling.

    Please know that we did not make this decision lightly. Thank you for your continued interest and support of LYNKED IN and the Lynch Syndrome Center. Please do not hesitate to reach out to us at 617-582-9113 or LynchSyndromeCenter@dfci.harvard.edu with any questions or concerns.

    View video coverage of presentations from past LYNKED IN conferences:

  • patient Allen

    2019 LYNKED IN: Participant take-aways

    View Slideshow

  • Online Resources

    Patients Helping Patients

    Team Lynch Syndrome (formerly Team Sandi) is our Center's team for Dana-Farber's Jimmy Fund Walk, now in its eighth year. Since 2013, Team Lynch Syndrome has raised over $160,000 for Lynch syndrome research at Dana-Farber. One hundred percent of the proceeds raised by our team directly support Lynch syndrome research and national education efforts to raise awareness of this rare disorder, including funding our annual LYNKED IN Lynch Syndrome Patient Conference.

    Team Lynch Syndrome was founded to honor Sandi Braune, a patient of Dr. Sapna Syngal, who passed away from colon cancer in 2003 shortly after discovering she had Lynch syndrome. The team comprises Lynch syndrome previvors (patients who have not had cancer but have tested positive for a mutation in one of the mismatch repair genes that cause Lynch syndrome), Lynch syndrome cancer survivors, non-carrier relatives, friends, and Dana-Farber staff, and is a great way to connect with other individuals with Lynch syndrome.

    This year's Jimmy Fund Walk will be held on Sunday, October 4, 2020.

    Follow Team Lynch Syndrome on Facebook

  • Team Lynch Syndrome Jimmy Fund Walk team


    Dana-Farber's Team Lynch Syndrome in the Jimmy Fund Walk


  • Support the Lynch Syndrome Center

    Your support can help advance research and provide care for individuals with Lynch syndrome, contributing towards:

    • Creating lasting educational materials and tools for the community
    • Hosting Fellows focused on Lynch syndrome patient care and research, to help us mentor and train the next generation of Lynch syndrome experts
    • Launching an interactive, patient-focused website with forums, support groups, event announcements, and news
    • Implementing patient-driven cancer risk assessment tools in clinical practices, so patients can assess their individualized risk for Lynch syndrome via a user-friendly web application
    • Putting together an American Medical Association-accredited physician-focused Lynch Syndrome Conference with educational talks
    • Organizing the annual patient LYNKED IN Conference, started in 2016, where patients can learn about the latest research and clinical management of Lynch syndrome
    • Hiring staff, such as additional nurse navigators to assist and support patients more closely; a program coordinator to support Center operations; and clinical and support staff to manage Lynch syndrome patient clinical care and research study appointments

    Naming opportunities for the Center are also still available. For more information, contact Angelle Kettlewell at angellem_kettlewell@dfci.harvard.edu or 617-632-5027.

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  • Contact the Lynch Syndrome Center

    617-582-9113

  • Living with Lynch Syndrome: Kerry's Story
    Kerry talks about the care she receives at the Lynch Syndrome Center at Dana-Farber Cancer Institute.


  • Living with Lynch Syndrome: Miguel's Story
    Miguel talks about the care he receives at the Lynch Syndrome Center at Dana-Farber Cancer Institute.