Jennifer W. Mack, MD, MPH

Who gets to die at home? Race and disease-related cause of death impacts young adults' place of death. Evid Based Nurs. 2023 Nov 30. View in: Pubmed

Quality of End-of-Life Care Among Adolescents and Young Adults With Cancer. J Clin Oncol. 2023 Oct 27; JCO2301272. View in: Pubmed

A helping hand: The impact of a central line insertion support team. Am J Infect Control. 2023 12; 51(12):1438-1440. View in: Pubmed

Agreement and disagreement between child-caregiver symptom and function reports in pediatric oncology. Pediatr Blood Cancer. 2024 Jan; 71(1):e30710. View in: Pubmed

CritCom: assessment of quality of interdisciplinary communication around deterioration in pediatric oncologic patients. Front Oncol. 2023; 13:1207578. View in: Pubmed

Designing and validating novel communication measures for pediatric, adolescent, and young adult oncology care and research: The PedCOM measures. Pediatr Blood Cancer. 2023 Dec; 70(12):e30685. View in: Pubmed

Oncology Clinicians' Perspectives on Online Patient Portal Use in Pediatric and Adolescent Cancer. JCO Clin Cancer Inform. 2023 Sep; 7:e2300124. View in: Pubmed

Discussions About Goals of Care and Advance Care Planning Among Adolescents and Young Adults With Cancer Approaching the End of Life. J Clin Oncol. 2023 10 20; 41(30):4739-4746. View in: Pubmed

Patient, Caregiver, and Clinician Perspectives on Core Components of Therapeutic Alliance for Adolescents and Young Adults With Advanced Cancer: A Qualitative Study. JAMA Netw Open. 2023 08 01; 6(8):e2328153. View in: Pubmed

Impact of the COVID-19 pandemic on pediatric faculty: a report from nine academic institutions. Pediatr Res. 2023 Jul 15. View in: Pubmed

Identifying contributors to disparities in patient access of online medical records: examining the role of clinician encouragement. JAMIA Open. 2023 Oct; 6(3):ooad049. View in: Pubmed

A new measure for multi-professional medical team communication: design and methodology for multilingual measurement development. Front Pediatr. 2023; 11:1127633. View in: Pubmed

A single-institution pediatric and young adult interventional oncology collaborative: Novel therapeutic options for relapsed/refractory solid tumors. Cancer Med. 2023 06; 12(12):13300-13308. View in: Pubmed

Prognostic awareness in Japanese patients with advanced cancer: a follow-up cohort study. Jpn J Clin Oncol. 2023 Apr 29; 53(5):410-418. View in: Pubmed

A multi-disciplinary team approach to pediatric malignant mandibular tumors. Int J Pediatr Otorhinolaryngol. 2023 May; 168:111547. View in: Pubmed

Application of Instrumental Variable Analysis in Pediatric End-of-Life Research: A Case Study. West J Nurs Res. 2023 06; 45(6):571-580. View in: Pubmed

Quality Indicators for Adolescents and Young Adults With Advanced Cancer: A Modified Delphi Process With Patients, Family Members, and Clinicians. J Pain Symptom Manage. 2023 Jul; 66(1):54-61. View in: Pubmed

Understanding hope at diagnosis: A study among Guatemalan parents of children with cancer. Cancer Med. 2023 04; 12(8):9966-9975. View in: Pubmed

The Day One Talk, 20 Years Later: What Have We Learned? JCO Oncol Pract. 2023 Apr; 19(4):164-166. View in: Pubmed

Interdisciplinary care of pediatric oncology patients: A survey of clinicians in Central America and the Caribbean. Pediatr Blood Cancer. 2023 05; 70(5):e30244. View in: Pubmed

"There's no playbook for when your kid has cancer": Desired elements of an electronic resource to support pediatric cancer communication. Pediatr Blood Cancer. 2023 03; 70(3):e30198. View in: Pubmed

Advice to Clinicians on Communication from Adolescents and Young Adults with Cancer and Parents of Children with Cancer. Children (Basel). 2022 Dec 21; 10(1). View in: Pubmed

Profiles of Symptom Suffering and Functioning in Children and Adolescents Receiving Chemotherapy. Cancer Nurs. 2023 Mar-Apr 01; 46(2):E129-E137. View in: Pubmed

Evaluating the cost-effectiveness of pediatric concurrent versus standard hospice care. Nurs Econ. 2022 Nov-Dec; 40(6):297-304. View in: Pubmed

Oncologist approaches to communicating uncertain disease status in pediatric cancer: a qualitative study. BMC Cancer. 2022 Oct 31; 22(1):1109. View in: Pubmed

"The simple life experiences that every other human gets": Desire for normalcy among adolescents and young adults with advanced cancer. Pediatr Blood Cancer. 2023 Jan; 70(1):e30035. View in: Pubmed

Conceptualizing the Value of Pediatric Concurrent Hospice Care. J Hosp Palliat Nurs. 2023 02 01; 25(1):31-38. View in: Pubmed

Capturing the young child's reports of cancer treatment tolerability: Does our practice reflect an assumption that they cannot report? Pediatr Blood Cancer. 2023 Jan; 70(1):e30028. View in: Pubmed

Longitudinal use of patient reported outcomes in pediatric leukemia and lymphoma reveals clinically relevant symptomatic adverse events. Pediatr Blood Cancer. 2022 12; 69(12):e29986. View in: Pubmed

"Seed Planting" As an Approach for Longitudinal Prognostic Disclosure in Pediatric Cancer: A Case Series. J Palliat Med. 2023 03; 26(3):447-451. View in: Pubmed

Change in the Parent-Clinician Relationship Throughout the First Year of Treatment in Pediatric Oncology. JAMA Netw Open. 2022 09 01; 5(9):e2230503. View in: Pubmed

Development and Adaptation of a Patient-Centered Communication Survey for Parents of Children With Cancer in Guatemala. JCO Glob Oncol. 2022 09; 8:e2200124. View in: Pubmed

Navigating prognostic communication when children with poor-prognosis cancer experience prolonged disease stability. Pediatr Blood Cancer. 2023 Jan; 70(1):e29920. View in: Pubmed

Patient, Family, and Clinician Perspectives on Location of Death for Adolescents and Young Adults With Cancer. JCO Oncol Pract. 2022 10; 18(10):e1621-e1629. View in: Pubmed

Mismatch between Pediatric Oncologists' Private and Parent-Facing Prognostic Communication: Communication Patterns Used to Soften Prognostic Disclosure. J Palliat Med. 2023 02; 26(2):210-219. View in: Pubmed

Cancer treatment decision-making among parents of paediatric oncology patients in Guatemala: a mixed-methods study. BMJ Open. 2022 08 11; 12(8):e057350. View in: Pubmed

Validity and reliability of the Japanese version of the Peace, Equanimity, and Acceptance in the Cancer Experience (PEACE) questionnaire. Palliat Support Care. 2022 08; 20(4):549-555. View in: Pubmed

Thinking globally to improve care locally: A Delphi study protocol to achieve international clinical consensus on best-practice end-of-life communication with adolescents and young adults with cancer. PLoS One. 2022; 17(7):e0270797. View in: Pubmed

Silence in Conversations About Advancing Pediatric Cancer. Front Oncol. 2022; 12:894586. View in: Pubmed

Co-management of communication and care in adolescent and young adult oncology. Pediatr Blood Cancer. 2022 10; 69(10):e29813. View in: Pubmed

The Art of Saying Nothing. Pediatrics. 2022 Jun 01; 149(6). View in: Pubmed

Factors Affecting Hospice Use Among Adolescents and Young Adult Cancer Patients. J Adolesc Young Adult Oncol. 2023 04; 12(2):151-158. View in: Pubmed

Pediatric Concurrent Hospice Care: Cost Implications of a Hybrid Payment Model. Am J Hosp Palliat Care. 2022 Dec; 39(12):1436-1442. View in: Pubmed

A Framework for Promoting Diversity, Equity, and Inclusion in Genetics and Genomics Research. JAMA Health Forum. 2022 04; 3(4). View in: Pubmed

Lack of Concordance in Symptomatic Adverse Event Reporting by Children, Clinicians, and Caregivers: Implications for Cancer Clinical Trials. J Clin Oncol. 2022 05 20; 40(15):1623-1634. View in: Pubmed

Patterns of Healthcare Services Among Children With Advanced Cancer in Concurrent Hospice Care. Cancer Nurs. 2022 Nov-Dec 01; 45(6):E843-E848. View in: Pubmed

A National Study to Compare Effective Management of Constipation in Children Receiving Concurrent Versus Standard Hospice Care. J Hosp Palliat Nurs. 2022 02 01; 24(1):70-77. View in: Pubmed

Interdependent functions of communication with adolescents and young adults in oncology. Pediatr Blood Cancer. 2022 04; 69(4):e29588. View in: Pubmed

Health Literacy and Clinical Outcomes Following Hematopoietic Stem-Cell Transplantation. JCO Oncol Pract. 2022 06; 18(6):e857-e868. View in: Pubmed

Missing Voices: Lessons Learned from Nonparticipating Caregivers in Palliative Care Research. J Palliat Med. 2022 03; 25(3):455-460. View in: Pubmed

Racial and ethnic disparities in communication study enrollment for young people with cancer: A descriptive analysis of the literature. Patient Educ Couns. 2022 07; 105(7):2067-2073. View in: Pubmed

Bereaved Caregivers Perspectives of Negative Communication Experiences Near the End of Life for Adolescents and Young Adults with Cancer. J Adolesc Young Adult Oncol. 2022 10; 11(5):498-505. View in: Pubmed

Effectiveness of Pediatric Concurrent Hospice Care to Improve Continuity of Care. Am J Hosp Palliat Care. 2022 Oct; 39(10):1129-1136. View in: Pubmed

Early parental knowledge of late effect risks in children with cancer. Pediatr Blood Cancer. 2022 02; 69(2):e29473. View in: Pubmed

Acceptable, hopeful, and useful: development and mixed-method evaluation of an educational tool about reproductive options for people with sickle cell disease or trait. J Assist Reprod Genet. 2022 Jan; 39(1):183-193. View in: Pubmed

Parent and Clinician Perspectives on Challenging Parent-Clinician Relationships in Pediatric Oncology. JAMA Netw Open. 2021 11 01; 4(11):e2132138. View in: Pubmed

Multilevel barriers and facilitators of communication in pediatric oncology: A systematic review. Pediatr Blood Cancer. 2022 01; 69(1):e29405. View in: Pubmed

Thinking ahead: Parents' worries about late effects of childhood cancer treatment. Pediatr Blood Cancer. 2021 12; 68(12):e29335. View in: Pubmed

Communication Priorities and Experiences of Caregivers of Children With Cancer in Guatemala. JCO Glob Oncol. 2021 09; 7:1529-1536. View in: Pubmed

Broaching goals-of-care conversations in advancing pediatric cancer. Pediatr Blood Cancer. 2021 10; 68(10):e29270. View in: Pubmed

Patient, Family, and Clinician Perspectives on End-of-Life Care Quality Domains and Candidate Indicators for Adolescents and Young Adults With Cancer. JAMA Netw Open. 2021 08 02; 4(8):e2121888. View in: Pubmed

Facilitators Associated With Building and Sustaining Therapeutic Alliance in Advanced Pediatric Cancer. JAMA Netw Open. 2021 08 02; 4(8):e2120925. View in: Pubmed

Communication around palliative care principles and advance care planning between oncologists, children with advancing cancer and families. Br J Cancer. 2021 10; 125(8):1089-1099. View in: Pubmed

Who is coordinating pediatric concurrent hospice care? J Pain Symptom Manage. 2021 Nov; 62(5):e1-e4. View in: Pubmed

A Reliability Generalization Meta-Analysis of 17 Patient-Reported Outcome Measures for Positive Psychosocial Constructs in Children, Adolescents, and Young Adults with Cancer. J Adolesc Young Adult Oncol. 2022 04; 11(2):163-172. View in: Pubmed

Clinicians' Perspectives on the Functions of Communication in Pediatric Oncology. J Palliat Med. 2021 09; 24(10):1545-1549. View in: Pubmed

Patients, caregivers, and clinicians differ in performance status ratings: Implications for pediatric cancer clinical trials. Cancer. 2021 10 01; 127(19):3664-3670. View in: Pubmed

Factors related to specialized palliative care use and aggressive care at end of life in Japanese patients with advanced solid cancers: a cohort study. Support Care Cancer. 2021 Dec; 29(12):7805-7813. View in: Pubmed

A National Profile of Children Receiving Pediatric Concurrent Hospice Care, 2011 to 2013. J Hosp Palliat Nurs. 2021 06 01; 23(3):214-220. View in: Pubmed

Differences in characteristics of children with cancer who receive standard versus concurrent hospice care. Pediatr Blood Cancer. 2021 09; 68(9):e29106. View in: Pubmed

Evaluation of Patient-Reported Outcome Measures of Positive Psychosocial Constructs in Children and Adolescent/Young Adults with Cancer: A Systematic Review of Measurement Properties. J Adolesc Young Adult Oncol. 2022 02; 11(1):78-94. View in: Pubmed

Conflicting goals and obligations: Tensions affecting communication in pediatric oncology. Patient Educ Couns. 2022 01; 105(1):56-61. View in: Pubmed

Prognostic Communication Between Oncologists and Parents of Children With Advanced Cancer. Pediatrics. 2021 06; 147(6). View in: Pubmed

The evolution of parents' beliefs about childhood cancer during diagnostic communication: a qualitative study in Guatemala. BMJ Glob Health. 2021 05; 6(5). View in: Pubmed

"What Matters to Me": What pediatric stem cell transplant patients want their providers to know. J Psychosoc Oncol. 2021; 39(4):586-593. View in: Pubmed

"Don't be afraid to speak up": Communication advice from parents and clinicians of children with cancer. Pediatr Blood Cancer. 2021 08; 68(8):e29052. View in: Pubmed

Assume It Will Break: Parental Perspectives on Negative Communication Experiences in Pediatric Oncology. JCO Oncol Pract. 2021 06; 17(6):e859-e871. View in: Pubmed

Medical complexity and concurrent hospice care: A national study of Medicaid children from 2011 to 2013. J Spec Pediatr Nurs. 2021 10; 26(4):e12333. View in: Pubmed

Caregiver Reported Quality of End-of-Life Care of Adolescent and Young Adult Decedents With Cancer. J Palliat Care. 2022 Apr; 37(2):87-92. View in: Pubmed

Multilevel barriers to communication in pediatric oncology: Clinicians' perspectives. Cancer. 2021 06 15; 127(12):2130-2138. View in: Pubmed

Barriers to Optimal End-of-Life Care for Adolescents and Young Adults With Cancer: Bereaved Caregiver Perspectives. J Natl Compr Canc Netw. 2021 May; 19(5):528-533. View in: Pubmed

Parental views on communication between children and clinicians in pediatric oncology: a qualitative study. Support Care Cancer. 2021 Sep; 29(9):4957-4968. View in: Pubmed

Patients' understanding of communication about palliative care and health condition in Japanese patients with unresectable or recurrent cancer: a cross-sectional survey. Ann Palliat Med. 2021 Mar; 10(3):2650-2661. View in: Pubmed

Identification of Evidence for Key Positive Psychological Constructs in Pediatric and Adolescent/Young Adult Patients with Cancer: A Scoping Review. J Adolesc Young Adult Oncol. 2021 06; 10(3):247-259. View in: Pubmed

Validation of the caregiver Pediatric Patient-Reported Outcomes Version of the Common Terminology Criteria for Adverse Events measure. Cancer. 2021 05 01; 127(9):1483-1494. View in: Pubmed

Interdisciplinary care of pediatric oncology patients in Central America and the Caribbean. Cancer. 2021 07 15; 127(14):2579-2586. View in: Pubmed

Agreement Between Child Self-report and Caregiver-Proxy Report for Symptoms and Functioning of Children Undergoing Cancer Treatment. JAMA Pediatr. 2020 11 01; 174(11):e202861. View in: Pubmed

Validity and Reliability of the Pediatric Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events. J Natl Cancer Inst. 2020 11 01; 112(11):1143-1152. View in: Pubmed

Alveolar rhabdomyosarcoma presenting as a pleural effusion: An atypical presentation of a malignancy. Pediatr Pulmonol. 2020 12; 55(12):3231-3233. View in: Pubmed

Subjective Toxicity Profiles of Children in Treatment for Cancer: A New Guide to Supportive Care? J Pain Symptom Manage. 2021 06; 61(6):1188-1195.e2. View in: Pubmed

Characteristics of uncertainty in advanced pediatric cancer conversations. Patient Educ Couns. 2021 05; 104(5):1066-1074. View in: Pubmed

Variation In State Medicaid Implementation Of The ACA: The Case Of Concurrent Care For Children. Health Aff (Millwood). 2020 10; 39(10):1770-1775. View in: Pubmed

Pediatric cancer communication in low- and middle-income countries: A scoping review. Cancer. 2020 12 01; 126(23):5030-5039. View in: Pubmed

Communication in Pediatric Oncology: A Qualitative Study. Pediatrics. 2020 09; 146(3). View in: Pubmed

Care experiences that foster trust between parents and physicians of children with cancer. Pediatr Blood Cancer. 2020 11; 67(11):e28399. View in: Pubmed

Exercise and Well-being in Adult Survivors of Childhood Cancer-Time for Interventions. JAMA Oncol. 2020 08 01; 6(8):1170-1171. View in: Pubmed

Role of Surgery in Rhabdomyosarcoma of the Head and Neck in Children. Laryngoscope. 2021 03; 131(3):E984-E992. View in: Pubmed

The use of interval-compressed chemotherapy with the addition of vincristine, irinotecan, and temozolomide for pediatric patients with newly diagnosed desmoplastic small round cell tumor. Pediatr Blood Cancer. 2020 10; 67(10):e28559. View in: Pubmed

Impact of cancer on school, work, and financial independence among adolescents and young adults. Cancer. 2020 10 01; 126(19):4400-4406. View in: Pubmed

Qualitative Study of Pediatric Early Warning Systems' Impact on Interdisciplinary Communication in Two Pediatric Oncology Hospitals With Varying Resources. JCO Glob Oncol. 2020 07; 6:1079-1086. View in: Pubmed

Pediatric Concurrent Hospice Care: A Scoping Review and Directions for Future Nursing Research. J Hosp Palliat Nurs. 2020 06; 22(3):238-245. View in: Pubmed

Early information needs of adolescents and young adults about late effects of cancer treatment. Cancer. 2020 07 15; 126(14):3281-3288. View in: Pubmed

Racial and Ethnic Differences in Communication and Care for Children With Advanced Cancer. J Pain Symptom Manage. 2020 10; 60(4):782-789. View in: Pubmed

Parental Considerations Regarding Cure and Late Effects for Children With Cancer. Pediatrics. 2020 05; 145(5). View in: Pubmed

Humour and laughing in patients with prolonged incurable cancer: an ethnographic study in a comprehensive cancer centre. Qual Life Res. 2020 Sep; 29(9):2425-2434. View in: Pubmed

Psychosocial care for children receiving chimeric antigen receptor (CAR) T-cell therapy. Pediatr Blood Cancer. 2020 05; 67(5):e28249. View in: Pubmed

Oncologists' Communication and Decision-Making Behaviors Affect Perceptions of Sensitive Information Exchange for Adolescent and Young Adult Patients. J Palliat Med. 2020 03; 23(3):310-311. View in: Pubmed

Communication Regarding Therapeutic Clinical Trial Enrollment Between Oncologists and Adolescents and Young Adults with Cancer. J Adolesc Young Adult Oncol. 2020 10; 9(5):608-612. View in: Pubmed

Teamwork in prognostic communication: Addressing bottlenecks and barriers. Pediatr Blood Cancer. 2020 05; 67(5):e28192. View in: Pubmed

Expanding construct validity of established and new PROMIS Pediatric measures for children and adolescents receiving cancer treatment. Pediatr Blood Cancer. 2020 04; 67(4):e28160. View in: Pubmed

On listening. Cancer. 2020 01 01; 126(9):1828-1831. View in: Pubmed

Peace of mind among adolescents and young adults with cancer. Psychooncology. 2020 03; 29(3):572-578. View in: Pubmed

Communication during childhood cancer: Systematic review of patient perspectives. Cancer. 2020 02 15; 126(4):701-716. View in: Pubmed

End-of-life care among adolescent and young adult patients with cancer living in poverty. Cancer. 2020 02 15; 126(4):886-893. View in: Pubmed

Emotional Communication in Advanced Pediatric Cancer Conversations. J Pain Symptom Manage. 2020 04; 59(4):808-817.e2. View in: Pubmed

Helping parents prepare for their child's end of life: A retrospective survey of cancer-bereaved parents. Pediatr Blood Cancer. 2020 02; 67(2):e27993. View in: Pubmed

Unrealistic parental expectations for cure in poor-prognosis childhood cancer. Cancer. 2020 01 15; 126(2):416-424. View in: Pubmed

Longitudinal prognostic communication needs of adolescents and young adults with cancer. Cancer. 2020 01 15; 126(2):400-407. View in: Pubmed

Mapping child and adolescent self-reported symptom data to clinician-reported adverse event grading to improve pediatric oncology care and research. Cancer. 2020 01 01; 126(1):140-147. View in: Pubmed

Communication interventions in adult and pediatric oncology: A scoping review and analysis of behavioral targets. PLoS One. 2019; 14(8):e0221536. View in: Pubmed

Racial and Ethnic Differences in Parental Decision-Making Roles in Pediatric Oncology. J Palliat Med. 2020 02; 23(2):192-197. View in: Pubmed

Knowing versus doing: The value of behavioral change models for emotional communication in oncology. Patient Educ Couns. 2019 12; 102(12):2344-2348. View in: Pubmed

Recovery of offline and online sentence processing in aphasia: Language and domain-general network neuroplasticity. Cortex. 2019 11; 120:394-418. View in: Pubmed

The evolution of regret: decision-making for parents of children with cancer. Support Care Cancer. 2020 Mar; 28(3):1215-1222. View in: Pubmed

Things that matter: Adolescent and young adult patients' priorities during cancer care. Pediatr Blood Cancer. 2019 09; 66(9):e27883. View in: Pubmed

Effective Communication for Newly Diagnosed Pediatric Patients With Cancer: Considerations for the Patients, Family Members, Providers, and Multidisciplinary Team. Am Soc Clin Oncol Educ Book. 2019 Jan; 39:573-581. View in: Pubmed

Adolescent and Young Adult Cancer Patients' Experiences With Treatment Decision-making. Pediatrics. 2019 05; 143(5). View in: Pubmed

How Do Blood Cancer Doctors Discuss Prognosis? Findings from a National Survey of Hematologic Oncologists. J Palliat Med. 2019 06; 22(6):677-684. View in: Pubmed

The genomic history of the Iberian Peninsula over the past 8000 years. Science. 2019 03 15; 363(6432):1230-1234. View in: Pubmed

Mucoepidermoid carcinoma of the head and neck in children. Int J Pediatr Otorhinolaryngol. 2019 May; 120:93-99. View in: Pubmed

Inclusion of children in the initial conversation about their cancer diagnosis: impact on parent experiences of the communication process. Support Care Cancer. 2019 Apr; 27(4):1319-1324. View in: Pubmed

Duality of purpose: Participant and parent understanding of the purpose of genomic tumor profiling research among children and young adults with solid tumors. JCO Precis Oncol. 2019; 3. View in: Pubmed

Persistently low peace of mind in parents of cancer patients: A five-year follow-up study. Pediatr Blood Cancer. 2019 05; 66(5):e27609. View in: Pubmed

Decisional burden among parents of children with cancer. Cancer. 2019 04 15; 125(8):1365-1372. View in: Pubmed

Squamous cell carcinoma of the head and neck in children. Int J Pediatr Otorhinolaryngol. 2019 Feb; 117:131-137. View in: Pubmed

Parental distress and desire for information regarding long-term implications of pediatric cancer treatment. Cancer. 2018 12 01; 124(23):4529-4537. View in: Pubmed

Patient perceptions of curability and physician-reported disclosures of incurability in Japanese patients with unresectable/recurrent cancer: a cross-sectional survey. Jpn J Clin Oncol. 2018 Oct 01; 48(10):913-919. View in: Pubmed

The PRISM intervention for adolescents and young adults with cancer: Paying attention to the patient as a whole person. Cancer. 2018 10 01; 124(19):3802-3805. View in: Pubmed

Pediatric vincristine-related vocal fold paralysis. Int J Pediatr Otorhinolaryngol. 2018 11; 114:166-169. View in: Pubmed

Closing the Gap on Pediatric Palliative Oncology Disparities. Semin Oncol Nurs. 2018 08; 34(3):294-302. View in: Pubmed

How Should We Enhance the Process and Purpose of Prognostic Communication in Oncology? AMA J Ethics. 2018 08 01; 20(8):E757-765. View in: Pubmed

Communication About Prognosis With Adolescent and Young Adult Patients With Cancer: Information Needs, Prognostic Awareness, and Outcomes of Disclosure. J Clin Oncol. 2018 06 20; 36(18):1861-1867. View in: Pubmed

Parent understanding of the risk of future limitations secondary to pediatric cancer treatment. Pediatr Blood Cancer. 2018 07; 65(7):e27020. View in: Pubmed

Reply to: Comment on: Adolescent patient involvement in discussions about relapsed or refractory cancer with oncology clinicians. Pediatr Blood Cancer. 2018 07; 65(7):e27049. View in: Pubmed

Reply to Cross-cultural communication in pediatric oncology: Catch them when they're young. Cancer. 2018 04 01; 124(7):1517. View in: Pubmed

Parent perspectives on information about late effects of childhood cancer treatment and their role in initial treatment decision making. Pediatr Blood Cancer. 2018 06; 65(6):e26978. View in: Pubmed

Sources of parental hope in pediatric oncology. Pediatr Blood Cancer. 2018 06; 65(6):e26981. View in: Pubmed

Intended and unintended consequences: Ethics, communication, and prognostic disclosure in pediatric oncology. Cancer. 2018 03 15; 124(6):1232-1241. View in: Pubmed

Adolescent patient involvement in discussions about relapsed or refractory cancer with oncology clinicians. Pediatr Blood Cancer. 2018 04; 65(4). View in: Pubmed

How Parents of Children With Cancer Learn About Their Children's Prognosis. Pediatrics. 2018 01; 141(1). View in: Pubmed

Child and adolescent self-report symptom measurement in pediatric oncology research: a systematic literature review. Qual Life Res. 2018 02; 27(2):291-319. View in: Pubmed

Disparities in prognosis communication among parents of children with cancer: The impact of race and ethnicity. Cancer. 2017 Oct 15; 123(20):3995-4003. View in: Pubmed

Evaluation of Patient and Family Outpatient Complaints as a Strategy to Prioritize Efforts to Improve Cancer Care Delivery. Jt Comm J Qual Patient Saf. 2017 Oct; 43(10):498-507. View in: Pubmed

A Research Agenda for Communication Between Health Care Professionals and Patients Living With Serious Illness. JAMA Intern Med. 2017 09 01; 177(9):1361-1366. View in: Pubmed

Pediatric Palliative Care-A Shared Priority. JAMA Oncol. 2017 09 01; 3(9):1220-1221. View in: Pubmed

Longitudinal parental preferences for late effects communication during cancer treatment. Pediatr Blood Cancer. 2018 Jan; 65(1). View in: Pubmed

Communication in pediatric oncology: State of the field and research agenda. Pediatr Blood Cancer. 2018 Jan; 65(1). View in: Pubmed

Fatalism and educational disparities in beliefs about the curability of advanced cancer. Patient Educ Couns. 2018 Jan; 101(1):113-118. View in: Pubmed

How a Child With Cancer Moved From Vulnerability to Resilience. J Clin Oncol. 2017 09 20; 35(27):3169-3171. View in: Pubmed

Holding hope. Pediatr Blood Cancer. 2017 09; 64(9). View in: Pubmed

Prognostic disclosures over time: Parental preferences and physician practices. Cancer. 2017 Oct 15; 123(20):4031-4038. View in: Pubmed

Cognitive Interview-Based Validation of the Patient-Reported Outcomes Version of the Common Terminology Criteria for Adverse Events in Adolescents with Cancer. J Pain Symptom Manage. 2017 04; 53(4):759-766. View in: Pubmed

Development of quality indicators for transition from pediatric to adult care in sickle cell disease: A modified Delphi survey of adult providers. Pediatr Blood Cancer. 2017 06; 64(6). View in: Pubmed

Communication preferences of pediatric cancer patients: talking about prognosis and their future life. Support Care Cancer. 2017 03; 25(3):769-774. View in: Pubmed

Difficult relationships between parents and physicians of children with cancer: A qualitative study of parent and physician perspectives. Cancer. 2017 02 15; 123(4):675-681. View in: Pubmed

Decisional Regret Among Parents of Children With Cancer. J Clin Oncol. 2016 11 20; 34(33):4023-4029. View in: Pubmed

Eliciting the child's voice in adverse event reporting in oncology trials: Cognitive interview findings from the Pediatric Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events initiative. Pediatr Blood Cancer. 2017 03; 64(3). View in: Pubmed

Prognostic Disclosures to Children: A Historical Perspective. Pediatrics. 2016 09; 138(3). View in: Pubmed

What Adult Cancer Care Can Learn From Pediatrics. J Oncol Pract. 2016 09; 12(9):765-7. View in: Pubmed

Care in the Final Month of Life among Adolescent and Young Adult Cancer Patients in Kaiser Permanente Southern California. J Palliat Med. 2016 11; 19(11):1136-1141. View in: Pubmed

Patient/parent perspectives on genomic tumor profiling of pediatric solid tumors: The Individualized Cancer Therapy (iCat) experience. Pediatr Blood Cancer. 2016 11; 63(11):1974-82. View in: Pubmed

Home care for children with multiple complex chronic conditions at the end of life: The choice of hospice versus home health. Home Health Care Serv Q. 2016 Jul-Dec; 35(3-4):101-111. View in: Pubmed

Parental preparedness for late effects and long-term quality of life in survivors of childhood cancer. Cancer. 2016 08 15; 122(16):2587-94. View in: Pubmed

Lower Patient Ratings of Physician Communication Are Associated With Unmet Need for Symptom Management in Patients With Lung and Colorectal Cancer. J Oncol Pract. 2016 06; 12(6):e654-69. View in: Pubmed

"Don't Try to Cover the Sky with Your Hands": Parents' Experiences with Prognosis Communication About Their Children with Advanced Cancer. J Palliat Med. 2016 06; 19(6):626-31. View in: Pubmed

Communication Skills Training in Pediatric Oncology: Moving Beyond Role Modeling. Pediatr Blood Cancer. 2016 Jun; 63(6):966-72. View in: Pubmed

Clusters of Multiple Complex Chronic Conditions: A Latent Class Analysis of Children at End of Life. J Pain Symptom Manage. 2016 05; 51(5):868-74. View in: Pubmed

Severe Tumor Lysis Syndrome and Acute Pulmonary Edema Requiring Extracorporeal Membrane Oxygenation Following Initiation of Chemotherapy for Metastatic Alveolar Rhabdomyosarcoma. Pediatr Blood Cancer. 2016 May; 63(5):928-30. View in: Pubmed

Young Adult Perspectives on a Successful Transition from Pediatric to Adult Care in Sickle Cell Disease. J Hematol Res. 2015 Dec; 2(1):17-24. View in: Pubmed

High Intensity of End-of-Life Care Among Adolescent and Young Adult Cancer Patients in the New York State Medicaid Program. Med Care. 2015 Dec; 53(12):1018-26. View in: Pubmed

Intensity of Medical Interventions between Diagnosis and Death in Patients with Advanced Lung and Colorectal Cancer: A CanCORS Analysis. J Palliat Med. 2016 Jan; 19(1):42-50. View in: Pubmed

Cancer treatment decision-making among young adults with lung and colorectal cancer: a comparison with adults in middle age. Psychooncology. 2016 09; 25(9):1085-91. View in: Pubmed

Deeper Conversations Need Not Wait Until the End. J Clin Oncol. 2015 Nov 20; 33(33):3974. View in: Pubmed

End-of-Life Care Intensity Among Adolescent and Young Adult Patients With Cancer in Kaiser Permanente Southern California. JAMA Oncol. 2015 Aug; 1(5):592-600. View in: Pubmed

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Hope and prognostic disclosure. J Clin Oncol. 2007 Dec 10; 25(35):5636-42. View in: Pubmed

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The Day One Talk. J Clin Oncol. 2004 Feb 01; 22(3):563-6. View in: Pubmed

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