Oncologist approaches to communicating uncertain disease status in pediatric cancer: a qualitative study. BMC Cancer. 2022 Oct 31; 22(1):1109.
View in:
PubMed
"The simple life experiences that every other human gets": Desire for normalcy among adolescents and young adults with advanced cancer. Pediatr Blood Cancer. 2022 Oct 29; e30035.
View in:
PubMed
Conceptualizing the Value of Pediatric Concurrent Hospice Care. J Hosp Palliat Nurs. 2022 Oct 27.
View in:
PubMed
Capturing the young child's reports of cancer treatment tolerability: Does our practice reflect an assumption that they cannot report? Pediatr Blood Cancer. 2022 Oct 17; e30028.
View in:
PubMed
Longitudinal use of patient reported outcomes in pediatric leukemia and lymphoma reveals clinically relevant symptomatic adverse events. Pediatr Blood Cancer. 2022 Dec; 69(12):e29986.
View in:
PubMed
"Seed Planting" As an Approach for Longitudinal Prognostic Disclosure in Pediatric Cancer: A Case Series. J Palliat Med. 2022 Sep 12.
View in:
PubMed
Change in the Parent-Clinician Relationship Throughout the First Year of Treatment in Pediatric Oncology. JAMA Netw Open. 2022 09 01; 5(9):e2230503.
View in:
PubMed
Development and Adaptation of a Patient-Centered Communication Survey for Parents of Children With Cancer in Guatemala. JCO Glob Oncol. 2022 09; 8:e2200124.
View in:
PubMed
Navigating prognostic communication when children with poor-prognosis cancer experience prolonged disease stability. Pediatr Blood Cancer. 2022 Aug 24; e29920.
View in:
PubMed
Patient, Family, and Clinician Perspectives on Location of Death for Adolescents and Young Adults With Cancer. JCO Oncol Pract. 2022 Oct; 18(10):e1621-e1629.
View in:
PubMed
Mismatch between Pediatric Oncologists' Private and Parent-Facing Prognostic Communication: Communication Patterns Used to Soften Prognostic Disclosure. J Palliat Med. 2022 Aug 17.
View in:
PubMed
Cancer treatment decision-making among parents of paediatric oncology patients in Guatemala: a mixed-methods study. BMJ Open. 2022 08 11; 12(8):e057350.
View in:
PubMed
Validity and reliability of the Japanese version of the Peace, Equanimity, and Acceptance in the Cancer Experience (PEACE) questionnaire. Palliat Support Care. 2022 08; 20(4):549-555.
View in:
PubMed
Thinking globally to improve care locally: A Delphi study protocol to achieve international clinical consensus on best-practice end-of-life communication with adolescents and young adults with cancer. PLoS One. 2022; 17(7):e0270797.
View in:
PubMed
Profiles of Symptom Suffering and Functioning in Children and Adolescents Receiving Chemotherapy. Cancer Nurs. 2022 Jul 01.
View in:
PubMed
Silence in Conversations About Advancing Pediatric Cancer. Front Oncol. 2022; 12:894586.
View in:
PubMed
Co-management of communication and care in adolescent and young adult oncology. Pediatr Blood Cancer. 2022 10; 69(10):e29813.
View in:
PubMed
The Art of Saying Nothing. Pediatrics. 2022 Jun 01; 149(6).
View in:
PubMed
Factors Affecting Hospice Use Among Adolescents and Young Adult Cancer Patients. J Adolesc Young Adult Oncol. 2022 May 27.
View in:
PubMed
Pediatric Concurrent Hospice Care: Cost Implications of a Hybrid Payment Model. Am J Hosp Palliat Care. 2022 Dec; 39(12):1436-1442.
View in:
PubMed
A Framework for Promoting Diversity, Equity, and Inclusion in Genetics and Genomics Research. JAMA Health Forum. 2022 04; 3(4).
View in:
PubMed
Lack of Concordance in Symptomatic Adverse Event Reporting by Children, Clinicians, and Caregivers: Implications for Cancer Clinical Trials. J Clin Oncol. 2022 05 20; 40(15):1623-1634.
View in:
PubMed
Patterns of Healthcare Services Among Children With Advanced Cancer in Concurrent Hospice Care. Cancer Nurs. 2022 Nov-Dec 01; 45(6):E843-E848.
View in:
PubMed
A National Study to Compare Effective Management of Constipation in Children Receiving Concurrent Versus Standard Hospice Care. J Hosp Palliat Nurs. 2022 02 01; 24(1):70-77.
View in:
PubMed
Interdependent functions of communication with adolescents and young adults in oncology. Pediatr Blood Cancer. 2022 04; 69(4):e29588.
View in:
PubMed
Health Literacy and Clinical Outcomes Following Hematopoietic Stem-Cell Transplantation. JCO Oncol Pract. 2022 06; 18(6):e857-e868.
View in:
PubMed
Missing Voices: Lessons Learned from Nonparticipating Caregivers in Palliative Care Research. J Palliat Med. 2022 03; 25(3):455-460.
View in:
PubMed
Racial and ethnic disparities in communication study enrollment for young people with cancer: A descriptive analysis of the literature. Patient Educ Couns. 2022 07; 105(7):2067-2073.
View in:
PubMed
Bereaved Caregivers Perspectives of Negative Communication Experiences Near the End of Life for Adolescents and Young Adults with Cancer. J Adolesc Young Adult Oncol. 2022 10; 11(5):498-505.
View in:
PubMed
Effectiveness of Pediatric Concurrent Hospice Care to Improve Continuity of Care. Am J Hosp Palliat Care. 2022 Oct; 39(10):1129-1136.
View in:
PubMed
Early parental knowledge of late effect risks in children with cancer. Pediatr Blood Cancer. 2022 02; 69(2):e29473.
View in:
PubMed
Acceptable, hopeful, and useful: development and mixed-method evaluation of an educational tool about reproductive options for people with sickle cell disease or trait. J Assist Reprod Genet. 2022 Jan; 39(1):183-193.
View in:
PubMed
Parent and Clinician Perspectives on Challenging Parent-Clinician Relationships in Pediatric Oncology. JAMA Netw Open. 2021 11 01; 4(11):e2132138.
View in:
PubMed
Multilevel barriers and facilitators of communication in pediatric oncology: A systematic review. Pediatr Blood Cancer. 2022 01; 69(1):e29405.
View in:
PubMed
Thinking ahead: Parents' worries about late effects of childhood cancer treatment. Pediatr Blood Cancer. 2021 12; 68(12):e29335.
View in:
PubMed
Communication Priorities and Experiences of Caregivers of Children With Cancer in Guatemala. JCO Glob Oncol. 2021 09; 7:1529-1536.
View in:
PubMed
Broaching goals-of-care conversations in advancing pediatric cancer. Pediatr Blood Cancer. 2021 10; 68(10):e29270.
View in:
PubMed
Patient, Family, and Clinician Perspectives on End-of-Life Care Quality Domains and Candidate Indicators for Adolescents and Young Adults With Cancer. JAMA Netw Open. 2021 08 02; 4(8):e2121888.
View in:
PubMed
Facilitators Associated With Building and Sustaining Therapeutic Alliance in Advanced Pediatric Cancer. JAMA Netw Open. 2021 08 02; 4(8):e2120925.
View in:
PubMed
Communication around palliative care principles and advance care planning between oncologists, children with advancing cancer and families. Br J Cancer. 2021 10; 125(8):1089-1099.
View in:
PubMed
Who is coordinating pediatric concurrent hospice care? J Pain Symptom Manage. 2021 Nov; 62(5):e1-e4.
View in:
PubMed
A Reliability Generalization Meta-Analysis of 17 Patient-Reported Outcome Measures for Positive Psychosocial Constructs in Children, Adolescents, and Young Adults with Cancer. J Adolesc Young Adult Oncol. 2022 04; 11(2):163-172.
View in:
PubMed
Clinicians' Perspectives on the Functions of Communication in Pediatric Oncology. J Palliat Med. 2021 09; 24(10):1545-1549.
View in:
PubMed
Patients, caregivers, and clinicians differ in performance status ratings: Implications for pediatric cancer clinical trials. Cancer. 2021 10 01; 127(19):3664-3670.
View in:
PubMed
Factors related to specialized palliative care use and aggressive care at end of life in Japanese patients with advanced solid cancers: a cohort study. Support Care Cancer. 2021 Dec; 29(12):7805-7813.
View in:
PubMed
A National Profile of Children Receiving Pediatric Concurrent Hospice Care, 2011 to 2013. J Hosp Palliat Nurs. 2021 06 01; 23(3):214-220.
View in:
PubMed
Differences in characteristics of children with cancer who receive standard versus concurrent hospice care. Pediatr Blood Cancer. 2021 09; 68(9):e29106.
View in:
PubMed
Evaluation of Patient-Reported Outcome Measures of Positive Psychosocial Constructs in Children and Adolescent/Young Adults with Cancer: A Systematic Review of Measurement Properties. J Adolesc Young Adult Oncol. 2022 02; 11(1):78-94.
View in:
PubMed
Conflicting goals and obligations: Tensions affecting communication in pediatric oncology. Patient Educ Couns. 2022 01; 105(1):56-61.
View in:
PubMed
Prognostic Communication Between Oncologists and Parents of Children With Advanced Cancer. Pediatrics. 2021 06; 147(6).
View in:
PubMed
The evolution of parents' beliefs about childhood cancer during diagnostic communication: a qualitative study in Guatemala. BMJ Glob Health. 2021 05; 6(5).
View in:
PubMed
"What Matters to Me": What pediatric stem cell transplant patients want their providers to know. J Psychosoc Oncol. 2021; 39(4):586-593.
View in:
PubMed
"Don't be afraid to speak up": Communication advice from parents and clinicians of children with cancer. Pediatr Blood Cancer. 2021 08; 68(8):e29052.
View in:
PubMed
Assume It Will Break: Parental Perspectives on Negative Communication Experiences in Pediatric Oncology. JCO Oncol Pract. 2021 06; 17(6):e859-e871.
View in:
PubMed
Medical complexity and concurrent hospice care: A national study of Medicaid children from 2011 to 2013. J Spec Pediatr Nurs. 2021 10; 26(4):e12333.
View in:
PubMed
Caregiver Reported Quality of End-of-Life Care of Adolescent and Young Adult Decedents With Cancer. J Palliat Care. 2022 Apr; 37(2):87-92.
View in:
PubMed
Multilevel barriers to communication in pediatric oncology: Clinicians' perspectives. Cancer. 2021 06 15; 127(12):2130-2138.
View in:
PubMed
Barriers to Optimal End-of-Life Care for Adolescents and Young Adults With Cancer: Bereaved Caregiver Perspectives. J Natl Compr Canc Netw. 2021 May; 19(5):528-533.
View in:
PubMed
Parental views on communication between children and clinicians in pediatric oncology: a qualitative study. Support Care Cancer. 2021 Sep; 29(9):4957-4968.
View in:
PubMed
Patients' understanding of communication about palliative care and health condition in Japanese patients with unresectable or recurrent cancer: a cross-sectional survey. Ann Palliat Med. 2021 Mar; 10(3):2650-2661.
View in:
PubMed
Identification of Evidence for Key Positive Psychological Constructs in Pediatric and Adolescent/Young Adult Patients with Cancer: A Scoping Review. J Adolesc Young Adult Oncol. 2021 06; 10(3):247-259.
View in:
PubMed
Validation of the caregiver Pediatric Patient-Reported Outcomes Version of the Common Terminology Criteria for Adverse Events measure. Cancer. 2021 05 01; 127(9):1483-1494.
View in:
PubMed
Interdisciplinary care of pediatric oncology patients in Central America and the Caribbean. Cancer. 2021 07 15; 127(14):2579-2586.
View in:
PubMed
Agreement Between Child Self-report and Caregiver-Proxy Report for Symptoms and Functioning of Children Undergoing Cancer Treatment. JAMA Pediatr. 2020 11 01; 174(11):e202861.
View in:
PubMed
Validity and Reliability of the Pediatric Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events. J Natl Cancer Inst. 2020 11 01; 112(11):1143-1152.
View in:
PubMed
Alveolar rhabdomyosarcoma presenting as a pleural effusion: An atypical presentation of a malignancy. Pediatr Pulmonol. 2020 12; 55(12):3231-3233.
View in:
PubMed
Subjective Toxicity Profiles of Children in Treatment for Cancer: A New Guide to Supportive Care? J Pain Symptom Manage. 2021 06; 61(6):1188-1195.e2.
View in:
PubMed
Characteristics of uncertainty in advanced pediatric cancer conversations. Patient Educ Couns. 2021 05; 104(5):1066-1074.
View in:
PubMed
Variation In State Medicaid Implementation Of The ACA: The Case Of Concurrent Care For Children. Health Aff (Millwood). 2020 10; 39(10):1770-1775.
View in:
PubMed
Pediatric cancer communication in low- and middle-income countries: A scoping review. Cancer. 2020 12 01; 126(23):5030-5039.
View in:
PubMed
Communication in Pediatric Oncology: A Qualitative Study. Pediatrics. 2020 09; 146(3).
View in:
PubMed
Care experiences that foster trust between parents and physicians of children with cancer. Pediatr Blood Cancer. 2020 11; 67(11):e28399.
View in:
PubMed
Exercise and Well-being in Adult Survivors of Childhood Cancer-Time for Interventions. JAMA Oncol. 2020 08 01; 6(8):1170-1171.
View in:
PubMed
Role of Surgery in Rhabdomyosarcoma of the Head and Neck in Children. Laryngoscope. 2021 03; 131(3):E984-E992.
View in:
PubMed
The use of interval-compressed chemotherapy with the addition of vincristine, irinotecan, and temozolomide for pediatric patients with newly diagnosed desmoplastic small round cell tumor. Pediatr Blood Cancer. 2020 10; 67(10):e28559.
View in:
PubMed
Impact of cancer on school, work, and financial independence among adolescents and young adults. Cancer. 2020 10 01; 126(19):4400-4406.
View in:
PubMed
Qualitative Study of Pediatric Early Warning Systems' Impact on Interdisciplinary Communication in Two Pediatric Oncology Hospitals With Varying Resources. JCO Glob Oncol. 2020 07; 6:1079-1086.
View in:
PubMed
Pediatric Concurrent Hospice Care: A Scoping Review and Directions for Future Nursing Research. J Hosp Palliat Nurs. 2020 06; 22(3):238-245.
View in:
PubMed
Early information needs of adolescents and young adults about late effects of cancer treatment. Cancer. 2020 07 15; 126(14):3281-3288.
View in:
PubMed
Racial and Ethnic Differences in Communication and Care for Children With Advanced Cancer. J Pain Symptom Manage. 2020 10; 60(4):782-789.
View in:
PubMed
Parental Considerations Regarding Cure and Late Effects for Children With Cancer. Pediatrics. 2020 05; 145(5).
View in:
PubMed
Humour and laughing in patients with prolonged incurable cancer: an ethnographic study in a comprehensive cancer centre. Qual Life Res. 2020 Sep; 29(9):2425-2434.
View in:
PubMed
Psychosocial care for children receiving chimeric antigen receptor (CAR) T-cell therapy. Pediatr Blood Cancer. 2020 05; 67(5):e28249.
View in:
PubMed
Oncologists' Communication and Decision-Making Behaviors Affect Perceptions of Sensitive Information Exchange for Adolescent and Young Adult Patients. J Palliat Med. 2020 03; 23(3):310-311.
View in:
PubMed
Communication Regarding Therapeutic Clinical Trial Enrollment Between Oncologists and Adolescents and Young Adults with Cancer. J Adolesc Young Adult Oncol. 2020 10; 9(5):608-612.
View in:
PubMed
Teamwork in prognostic communication: Addressing bottlenecks and barriers. Pediatr Blood Cancer. 2020 05; 67(5):e28192.
View in:
PubMed
Expanding construct validity of established and new PROMIS Pediatric measures for children and adolescents receiving cancer treatment. Pediatr Blood Cancer. 2020 04; 67(4):e28160.
View in:
PubMed
On listening. Cancer. 2020 01 01; 126(9):1828-1831.
View in:
PubMed
Peace of mind among adolescents and young adults with cancer. Psychooncology. 2020 03; 29(3):572-578.
View in:
PubMed
Communication during childhood cancer: Systematic review of patient perspectives. Cancer. 2020 02 15; 126(4):701-716.
View in:
PubMed
End-of-life care among adolescent and young adult patients with cancer living in poverty. Cancer. 2020 02 15; 126(4):886-893.
View in:
PubMed
Emotional Communication in Advanced Pediatric Cancer Conversations. J Pain Symptom Manage. 2020 04; 59(4):808-817.e2.
View in:
PubMed
Helping parents prepare for their child's end of life: A retrospective survey of cancer-bereaved parents. Pediatr Blood Cancer. 2020 02; 67(2):e27993.
View in:
PubMed
Unrealistic parental expectations for cure in poor-prognosis childhood cancer. Cancer. 2020 01 15; 126(2):416-424.
View in:
PubMed
Longitudinal prognostic communication needs of adolescents and young adults with cancer. Cancer. 2020 01 15; 126(2):400-407.
View in:
PubMed
Mapping child and adolescent self-reported symptom data to clinician-reported adverse event grading to improve pediatric oncology care and research. Cancer. 2020 01 01; 126(1):140-147.
View in:
PubMed
Communication interventions in adult and pediatric oncology: A scoping review and analysis of behavioral targets. PLoS One. 2019; 14(8):e0221536.
View in:
PubMed
Racial and Ethnic Differences in Parental Decision-Making Roles in Pediatric Oncology. J Palliat Med. 2020 02; 23(2):192-197.
View in:
PubMed
Knowing versus doing: The value of behavioral change models for emotional communication in oncology. Patient Educ Couns. 2019 12; 102(12):2344-2348.
View in:
PubMed
Recovery of offline and online sentence processing in aphasia: Language and domain-general network neuroplasticity. Cortex. 2019 11; 120:394-418.
View in:
PubMed
The evolution of regret: decision-making for parents of children with cancer. Support Care Cancer. 2020 Mar; 28(3):1215-1222.
View in:
PubMed
Things that matter: Adolescent and young adult patients' priorities during cancer care. Pediatr Blood Cancer. 2019 09; 66(9):e27883.
View in:
PubMed
Effective Communication for Newly Diagnosed Pediatric Patients With Cancer: Considerations for the Patients, Family Members, Providers, and Multidisciplinary Team. Am Soc Clin Oncol Educ Book. 2019 Jan; 39:573-581.
View in:
PubMed
Adolescent and Young Adult Cancer Patients' Experiences With Treatment Decision-making. Pediatrics. 2019 05; 143(5).
View in:
PubMed
How Do Blood Cancer Doctors Discuss Prognosis? Findings from a National Survey of Hematologic Oncologists. J Palliat Med. 2019 06; 22(6):677-684.
View in:
PubMed
The genomic history of the Iberian Peninsula over the past 8000 years. Science. 2019 03 15; 363(6432):1230-1234.
View in:
PubMed
Mucoepidermoid carcinoma of the head and neck in children. Int J Pediatr Otorhinolaryngol. 2019 May; 120:93-99.
View in:
PubMed
Inclusion of children in the initial conversation about their cancer diagnosis: impact on parent experiences of the communication process. Support Care Cancer. 2019 Apr; 27(4):1319-1324.
View in:
PubMed
Duality of purpose: Participant and parent understanding of the purpose of genomic tumor profiling research among children and young adults with solid tumors. JCO Precis Oncol. 2019; 3.
View in:
PubMed
Persistently low peace of mind in parents of cancer patients: A five-year follow-up study. Pediatr Blood Cancer. 2019 05; 66(5):e27609.
View in:
PubMed
Decisional burden among parents of children with cancer. Cancer. 2019 04 15; 125(8):1365-1372.
View in:
PubMed
Squamous cell carcinoma of the head and neck in children. Int J Pediatr Otorhinolaryngol. 2019 Feb; 117:131-137.
View in:
PubMed
Parental distress and desire for information regarding long-term implications of pediatric cancer treatment. Cancer. 2018 12 01; 124(23):4529-4537.
View in:
PubMed
Patient perceptions of curability and physician-reported disclosures of incurability in Japanese patients with unresectable/recurrent cancer: a cross-sectional survey. Jpn J Clin Oncol. 2018 Oct 01; 48(10):913-919.
View in:
PubMed
The PRISM intervention for adolescents and young adults with cancer: Paying attention to the patient as a whole person. Cancer. 2018 10 01; 124(19):3802-3805.
View in:
PubMed
Pediatric vincristine-related vocal fold paralysis. Int J Pediatr Otorhinolaryngol. 2018 11; 114:166-169.
View in:
PubMed
Closing the Gap on Pediatric Palliative Oncology Disparities. Semin Oncol Nurs. 2018 08; 34(3):294-302.
View in:
PubMed
How Should We Enhance the Process and Purpose of Prognostic Communication in Oncology? AMA J Ethics. 2018 08 01; 20(8):E757-765.
View in:
PubMed
Communication About Prognosis With Adolescent and Young Adult Patients With Cancer: Information Needs, Prognostic Awareness, and Outcomes of Disclosure. J Clin Oncol. 2018 06 20; 36(18):1861-1867.
View in:
PubMed
Parent understanding of the risk of future limitations secondary to pediatric cancer treatment. Pediatr Blood Cancer. 2018 07; 65(7):e27020.
View in:
PubMed
Reply to: Comment on: Adolescent patient involvement in discussions about relapsed or refractory cancer with oncology clinicians. Pediatr Blood Cancer. 2018 07; 65(7):e27049.
View in:
PubMed
Reply to Cross-cultural communication in pediatric oncology: Catch them when they're young. Cancer. 2018 04 01; 124(7):1517.
View in:
PubMed
Parent perspectives on information about late effects of childhood cancer treatment and their role in initial treatment decision making. Pediatr Blood Cancer. 2018 06; 65(6):e26978.
View in:
PubMed
Sources of parental hope in pediatric oncology. Pediatr Blood Cancer. 2018 06; 65(6):e26981.
View in:
PubMed
Intended and unintended consequences: Ethics, communication, and prognostic disclosure in pediatric oncology. Cancer. 2018 03 15; 124(6):1232-1241.
View in:
PubMed
Adolescent patient involvement in discussions about relapsed or refractory cancer with oncology clinicians. Pediatr Blood Cancer. 2018 04; 65(4).
View in:
PubMed
How Parents of Children With Cancer Learn About Their Children's Prognosis. Pediatrics. 2018 01; 141(1).
View in:
PubMed
Child and adolescent self-report symptom measurement in pediatric oncology research: a systematic literature review. Qual Life Res. 2018 02; 27(2):291-319.
View in:
PubMed
Disparities in prognosis communication among parents of children with cancer: The impact of race and ethnicity. Cancer. 2017 Oct 15; 123(20):3995-4003.
View in:
PubMed
Evaluation of Patient and Family Outpatient Complaints as a Strategy to Prioritize Efforts to Improve Cancer Care Delivery. Jt Comm J Qual Patient Saf. 2017 Oct; 43(10):498-507.
View in:
PubMed
A Research Agenda for Communication Between Health Care Professionals and Patients Living With Serious Illness. JAMA Intern Med. 2017 09 01; 177(9):1361-1366.
View in:
PubMed
Pediatric Palliative Care-A Shared Priority. JAMA Oncol. 2017 09 01; 3(9):1220-1221.
View in:
PubMed
Longitudinal parental preferences for late effects communication during cancer treatment. Pediatr Blood Cancer. 2018 Jan; 65(1).
View in:
PubMed
Communication in pediatric oncology: State of the field and research agenda. Pediatr Blood Cancer. 2018 Jan; 65(1).
View in:
PubMed
Fatalism and educational disparities in beliefs about the curability of advanced cancer. Patient Educ Couns. 2018 Jan; 101(1):113-118.
View in:
PubMed
How a Child With Cancer Moved From Vulnerability to Resilience. J Clin Oncol. 2017 09 20; 35(27):3169-3171.
View in:
PubMed
Holding hope. Pediatr Blood Cancer. 2017 09; 64(9).
View in:
PubMed
Prognostic disclosures over time: Parental preferences and physician practices. Cancer. 2017 Oct 15; 123(20):4031-4038.
View in:
PubMed
Cognitive Interview-Based Validation of the Patient-Reported Outcomes Version of the Common Terminology Criteria for Adverse Events in Adolescents with Cancer. J Pain Symptom Manage. 2017 04; 53(4):759-766.
View in:
PubMed
Development of quality indicators for transition from pediatric to adult care in sickle cell disease: A modified Delphi survey of adult providers. Pediatr Blood Cancer. 2017 06; 64(6).
View in:
PubMed
Communication preferences of pediatric cancer patients: talking about prognosis and their future life. Support Care Cancer. 2017 03; 25(3):769-774.
View in:
PubMed
Difficult relationships between parents and physicians of children with cancer: A qualitative study of parent and physician perspectives. Cancer. 2017 02 15; 123(4):675-681.
View in:
PubMed
Decisional Regret Among Parents of Children With Cancer. J Clin Oncol. 2016 11 20; 34(33):4023-4029.
View in:
PubMed
Eliciting the child's voice in adverse event reporting in oncology trials: Cognitive interview findings from the Pediatric Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events initiative. Pediatr Blood Cancer. 2017 03; 64(3).
View in:
PubMed
Prognostic Disclosures to Children: A Historical Perspective. Pediatrics. 2016 09; 138(3).
View in:
PubMed
What Adult Cancer Care Can Learn From Pediatrics. J Oncol Pract. 2016 09; 12(9):765-7.
View in:
PubMed
Care in the Final Month of Life among Adolescent and Young Adult Cancer Patients in Kaiser Permanente Southern California. J Palliat Med. 2016 11; 19(11):1136-1141.
View in:
PubMed
Patient/parent perspectives on genomic tumor profiling of pediatric solid tumors: The Individualized Cancer Therapy (iCat) experience. Pediatr Blood Cancer. 2016 11; 63(11):1974-82.
View in:
PubMed
Home care for children with multiple complex chronic conditions at the end of life: The choice of hospice versus home health. Home Health Care Serv Q. 2016 Jul-Dec; 35(3-4):101-111.
View in:
PubMed
Parental preparedness for late effects and long-term quality of life in survivors of childhood cancer. Cancer. 2016 08 15; 122(16):2587-94.
View in:
PubMed
Lower Patient Ratings of Physician Communication Are Associated With Unmet Need for Symptom Management in Patients With Lung and Colorectal Cancer. J Oncol Pract. 2016 06; 12(6):e654-69.
View in:
PubMed
"Don't Try to Cover the Sky with Your Hands": Parents' Experiences with Prognosis Communication About Their Children with Advanced Cancer. J Palliat Med. 2016 06; 19(6):626-31.
View in:
PubMed
Communication Skills Training in Pediatric Oncology: Moving Beyond Role Modeling. Pediatr Blood Cancer. 2016 Jun; 63(6):966-72.
View in:
PubMed
Clusters of Multiple Complex Chronic Conditions: A Latent Class Analysis of Children at End of Life. J Pain Symptom Manage. 2016 05; 51(5):868-74.
View in:
PubMed
Severe Tumor Lysis Syndrome and Acute Pulmonary Edema Requiring Extracorporeal Membrane Oxygenation Following Initiation of Chemotherapy for Metastatic Alveolar Rhabdomyosarcoma. Pediatr Blood Cancer. 2016 May; 63(5):928-30.
View in:
PubMed
Young Adult Perspectives on a Successful Transition from Pediatric to Adult Care in Sickle Cell Disease. J Hematol Res. 2015 Dec; 2(1):17-24.
View in:
PubMed
High Intensity of End-of-Life Care Among Adolescent and Young Adult Cancer Patients in the New York State Medicaid Program. Med Care. 2015 Dec; 53(12):1018-26.
View in:
PubMed
Intensity of Medical Interventions between Diagnosis and Death in Patients with Advanced Lung and Colorectal Cancer: A CanCORS Analysis. J Palliat Med. 2016 Jan; 19(1):42-50.
View in:
PubMed
Cancer treatment decision-making among young adults with lung and colorectal cancer: a comparison with adults in middle age. Psychooncology. 2016 09; 25(9):1085-91.
View in:
PubMed
Deeper Conversations Need Not Wait Until the End. J Clin Oncol. 2015 Nov 20; 33(33):3974.
View in:
PubMed
End-of-Life Care Intensity Among Adolescent and Young Adult Patients With Cancer in Kaiser Permanente Southern California. JAMA Oncol. 2015 Aug; 1(5):592-600.
View in:
PubMed
Parental hope for children with advanced cancer. Pediatrics. 2015 May; 135(5):868-74.
View in:
PubMed
Association of Actual and Preferred Decision Roles With Patient-Reported Quality of Care: Shared Decision Making in Cancer Care. JAMA Oncol. 2015 Apr; 1(1):50-8.
View in:
PubMed
When to say when: How aggressively to care for children with multiply relapsed cancer? Pediatr Blood Cancer. 2015 Jul; 62(7):1119-20.
View in:
PubMed
The role of families in decisions regarding cancer treatments. Cancer. 2015 Apr 01; 121(7):1079-87.
View in:
PubMed
Patient beliefs that chemotherapy may be curative and care received at the end of life among patients with metastatic lung and colorectal cancer. Cancer. 2015 Jun 01; 121(11):1891-7.
View in:
PubMed
Association of lower patient ratings of physician communication with need for symptom management in lung and colorectal cancer patients. J Clin Oncol. 2014 Nov; 32(31_suppl):153.
View in:
PubMed
Pediatric hospice and palliative care: designing a mobile app for clinical practice. Comput Inform Nurs. 2014 Jul; 32(7):299-302.
View in:
PubMed
Symptom prevalence in lung and colorectal cancer patients. J Pain Symptom Manage. 2015 Feb; 49(2):192-202.
View in:
PubMed
Physicians' propensity to discuss prognosis is associated with patients' awareness of prognosis for metastatic cancers. J Palliat Med. 2014 Jun; 17(6):673-82.
View in:
PubMed
Evaluating the quality of supportive oncology using patient-reported data. J Oncol Pract. 2014 Jul; 10(4):e223-30.
View in:
PubMed
Communicating about prognosis: ethical responsibilities of pediatricians and parents. Pediatrics. 2014 Feb; 133 Suppl 1:S24-30.
View in:
PubMed
Deliberation and the life cycle of informed consent. Hastings Cent Rep. 2014 Jan-Feb; 44(1):33-5.
View in:
PubMed
Parent perceptions of the quality of information received about a child's cancer. Pediatr Blood Cancer. 2013 Nov; 60(11):1896-901.
View in:
PubMed
Underuse of hospice care by Medicaid-insured patients with stage IV lung cancer in New York and California. J Clin Oncol. 2013 Jul 10; 31(20):2569-79.
View in:
PubMed
The presentation and management of mandibular tumors in the pediatric population. Laryngoscope. 2013 Aug; 123(8):2035-42.
View in:
PubMed
Talking with patients about dying. N Engl J Med. 2013 01 31; 368(5):480-1.
View in:
PubMed
Evaluating the quality of supportive oncology using patient-reported survey data. J Clin Oncol. 2012 Dec; 30(34_suppl):42.
View in:
PubMed
Associations between end-of-life discussion characteristics and care received near death: a prospective cohort study. J Clin Oncol. 2012 Dec 10; 30(35):4387-95.
View in:
PubMed
Patients' expectations about effects of chemotherapy for advanced cancer. N Engl J Med. 2012 Oct 25; 367(17):1616-25.
View in:
PubMed
Profit status and delivery of hospice care for infants: the mediating role of pediatric knowledge. J Palliat Med. 2012 Dec; 15(12):1369-73.
View in:
PubMed
Selecting ambulatory emergency care (AEC) patients from the medical emergency in-take: the derivation and validation of the Amb score. Clin Med (Lond). 2012 Oct; 12(5):420-6.
View in:
PubMed
Enough is indeed enough: ACGME required changes in pediatric training. Pediatr Blood Cancer. 2012 Dec 15; 59(7):1158-9.
View in:
PubMed
Reasons why physicians do not have discussions about poor prognosis, why it matters, and what can be improved. J Clin Oncol. 2012 Aug 01; 30(22):2715-7.
View in:
PubMed
Improving timeliness of antibiotic delivery for patients with fever and suspected neutropenia in a pediatric emergency department. Pediatrics. 2012 Jul; 130(1):e201-10.
View in:
PubMed
Research participation experiences of parents of children with cancer who were asked about their child's prognosis. J Palliat Med. 2012 Mar; 15(3):269-73.
View in:
PubMed
End-of-life care discussions among patients with advanced cancer: a cohort study. Ann Intern Med. 2012 Feb 07; 156(3):204-10.
View in:
PubMed
Communication and decision support for children with advanced cancer and their families. Am Soc Clin Oncol Educ Book. 2012; 637-43.
View in:
PubMed
Discussions about end-of-life care planning between physicians and patients with stage IV lung or colorectal cancer. J Clin Oncol. 2011 May 20; 29(15_suppl):6026.
View in:
PubMed
Parents' roles in decision making for children with cancer in the first year of cancer treatment. J Clin Oncol. 2011 May 20; 29(15):2085-90.
View in:
PubMed
Influence of patients' preferences and treatment site on cancer patients' end-of-life care. Cancer. 2010 Oct 01; 116(19):4656-63.
View in:
PubMed
Training program in cancer and blood diseases: Pediatric Hematology/Oncology Fellowship Program, Children's Hospital Boston/Dana-Farber Cancer Institute. Am J Hematol. 2010 Oct; 85(10):793-4.
View in:
PubMed
Racial disparities in the outcomes of communication on medical care received near death. Arch Intern Med. 2010 Sep 27; 170(17):1533-40.
View in:
PubMed
Absorbing information about a child's incurable cancer. Oncology. 2010; 78(3-4):259-66.
View in:
PubMed
End-of-life discussions, goal attainment, and distress at the end of life: predictors and outcomes of receipt of care consistent with preferences. J Clin Oncol. 2010 Mar 01; 28(7):1203-8.
View in:
PubMed
Sinonasal and laryngeal carcinoma in children: correlation of imaging characteristics with clinicopathologic and cytogenetic features. AJNR Am J Neuroradiol. 2010 Feb; 31(2):257-61.
View in:
PubMed
Measuring therapeutic alliance between oncologists and patients with advanced cancer: the Human Connection Scale. Cancer. 2009 Jul 15; 115(14):3302-11.
View in:
PubMed
Peace of mind and sense of purpose as core existential issues among parents of children with cancer. Arch Pediatr Adolesc Med. 2009 Jun; 163(6):519-24.
View in:
PubMed
Personalized end-of-life care: Associations between patient preferences and treatment intensity near death. J Clin Oncol. 2009 May 20; 27(15_suppl):6516.
View in:
PubMed
Associations between end-of-life discussions, patient mental health, medical care near death, and caregiver bereavement adjustment. JAMA. 2008 Oct 08; 300(14):1665-73.
View in:
PubMed
Parents' views of cancer-directed therapy for children with no realistic chance for cure. J Clin Oncol. 2008 Oct 10; 26(29):4759-64.
View in:
PubMed
A qualitative study of oncologists' approaches to end-of-life care. J Palliat Med. 2008 Jul; 11(6):893-906.
View in:
PubMed
Peace, Equanimity, and Acceptance in the Cancer Experience (PEACE): validation of a scale to assess acceptance and struggle with terminal illness. Cancer. 2008 Jun; 112(11):2509-17.
View in:
PubMed
Peace of mind and sense of purpose as core existential issues among parents of children with cancer. J Clin Oncol. 2008 May 20; 26(15_suppl):9518.
View in:
PubMed
Hope and prognostic disclosure. J Clin Oncol. 2007 Dec 10; 25(35):5636-42.
View in:
PubMed
Common gastrointestinal symptoms in pediatric palliative care: nausea, vomiting, constipation, anorexia, cachexia. Pediatr Clin North Am. 2007 Oct; 54(5):673-89, x.
View in:
PubMed
Quality of health care for children: role of health and chronic illness in inpatient care experiences. Arch Pediatr Adolesc Med. 2007 Sep; 161(9):828-34.
View in:
PubMed
Understanding of prognosis among parents of children with cancer: parental optimism and the parent-physician interaction. J Clin Oncol. 2007 Apr 10; 25(11):1357-62.
View in:
PubMed
Communication about prognosis between parents and physicians of children with cancer: parent preferences and the impact of prognostic information. J Clin Oncol. 2006 Nov 20; 24(33):5265-70.
View in:
PubMed
Understanding of prognosis among parents of children with cancer: Parental optimism and the role of the parent-physician interaction. J Clin Oncol. 2006 Jun 20; 24(18_suppl):6033.
View in:
PubMed
Mucoepidermoid carcinoma of the parotid gland in children: A 10-year experience. Arch Otolaryngol Head Neck Surg. 2006 Apr; 132(4):375-80.
View in:
PubMed
Early integration of pediatric palliative care: for some children, palliative care starts at diagnosis. Curr Opin Pediatr. 2006 Feb; 18(1):10-4.
View in:
PubMed
Can end of life care for the pediatric patient suffering with escalating and intractable symptoms be improved? J Pediatr Oncol Nurs. 2006 Jan-Feb; 23(1):45-51.
View in:
PubMed
Parent and physician perspectives on quality of care at the end of life in children with cancer. J Clin Oncol. 2005 Dec 20; 23(36):9155-61.
View in:
PubMed
Factors associated with the quality of care at the end of life in children with cancer. J Clin Oncol. 2004 Jul 15; 22(14_suppl):8529.
View in:
PubMed
The Day One Talk. J Clin Oncol. 2004 Feb 01; 22(3):563-6.
View in:
PubMed
Iatrogenic pleuropulmonary charcoal instillation in a teenager. Pediatr Pulmonol. 2003 Jun; 35(6):490-3.
View in:
PubMed
Massive hemoptysis in cystic fibrosis. Arch Intern Med. 1983 Feb; 143(2):287-90.
View in:
PubMed
Pulmonary hypertension in systemic lupus erythematosus. N Engl J Med. 1973 Jul 19; 289(3):157-8.
View in:
PubMed