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Jennifer W. Mack, MD, MPH


Pediatric Hematology/Oncology

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Jennifer W. Mack, MD, MPH

Physician

  • Associate Chief, Division of Population Sciences
  • Senior Physician
  • Associate Professor in Pediatrics, Harvard Medical School

Centers/Programs

Contact Information

  • Appointments888-733-4662 (New Pediatric Patients)
    617-632-3270 (Established Pediatric Patients)
  • Fax617-632-2270

Bio

Dr. Mack received her medical degree from Harvard Medical School 1998. She subsequently completed her residency in Pediatrics and her fellowship in Pediatric Hematology Oncology and Pediatric Palliative Care at Children's Hospital Boston and Dana-Farber Cancer Institute. In 2005, Dr. Mack received a master's in Public Health from the Harvard School of Public Health. She is an attending physician in the Jimmy Fund Clinic and at Children's Hospital Boston. Her research interests are in parent-physician and patient-physician communication, health care quality, and palliative care.

Board Certification:

  • Pediatric Hematology/Oncology, 2004
  • Pediatrics, 2001

Fellowship:

  • Boston Children's Hospital/Dana-Farber Cancer Institute, Pediatric Hematology/Oncology
  • Boston Children's Hospital/Dana-Farber Cancer Institute, Pediatric Palliative Care

Residency:

  • Boston Combined Residency Program, Boston Children's Hospital/Boston Medical Center, Pediatrics

Medical School:

  • Harvard Medical School

Research

Pediatric Oncology, Palliative Care, Outcomes Research

As a pediatric oncologist, I have a particular interest in cancer-related communication as a model for all difficult conversations. Much of my work focuses on communication about the cancer diagnosis, cancer treatment decision-making, and the transition to palliative care, where communication can have a major impact on the care that unfolds at the end of life.  I have developed clinical expertise in communication through dedicated inpatient and outpatient care of childhood cancer patients, created a body of research that defines specific attributes and outcomes of high quality communication, and trained pediatric hematology/oncology fellows and other physicians to communicate effectively with patients and families.

Understanding hope at diagnosis: A study among Guatemalan parents of children with cancer. Cancer Med. 2023 Feb 27.
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The Day One Talk, 20 Years Later: What Have We Learned? JCO Oncol Pract. 2023 Feb 17; OP2300005.
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Interdisciplinary care of pediatric oncology patients: A survey of clinicians in Central America and the Caribbean. Pediatr Blood Cancer. 2023 Feb 14; e30244.
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Prognostic awareness in Japanese patients with advanced cancer: a follow-up cohort study. Jpn J Clin Oncol. 2023 Jan 16.
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"There's no playbook for when your kid has cancer": Desired elements of an electronic resource to support pediatric cancer communication. Pediatr Blood Cancer. 2023 03; 70(3):e30198.
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Advice to Clinicians on Communication from Adolescents and Young Adults with Cancer and Parents of Children with Cancer. Children (Basel). 2022 Dec 21; 10(1).
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Profiles of Symptom Suffering and Functioning in Children and Adolescents Receiving Chemotherapy. Cancer Nurs. 2023 Mar-Apr 01; 46(2):E129-E137.
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Oncologist approaches to communicating uncertain disease status in pediatric cancer: a qualitative study. BMC Cancer. 2022 Oct 31; 22(1):1109.
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"The simple life experiences that every other human gets": Desire for normalcy among adolescents and young adults with advanced cancer. Pediatr Blood Cancer. 2023 01; 70(1):e30035.
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Conceptualizing the Value of Pediatric Concurrent Hospice Care. J Hosp Palliat Nurs. 2023 02 01; 25(1):31-38.
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Capturing the young child's reports of cancer treatment tolerability: Does our practice reflect an assumption that they cannot report? Pediatr Blood Cancer. 2023 01; 70(1):e30028.
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Longitudinal use of patient reported outcomes in pediatric leukemia and lymphoma reveals clinically relevant symptomatic adverse events. Pediatr Blood Cancer. 2022 Dec; 69(12):e29986.
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"Seed Planting" As an Approach for Longitudinal Prognostic Disclosure in Pediatric Cancer: A Case Series. J Palliat Med. 2023 Mar; 26(3):447-451.
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Change in the Parent-Clinician Relationship Throughout the First Year of Treatment in Pediatric Oncology. JAMA Netw Open. 2022 09 01; 5(9):e2230503.
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Development and Adaptation of a Patient-Centered Communication Survey for Parents of Children With Cancer in Guatemala. JCO Glob Oncol. 2022 09; 8:e2200124.
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Navigating prognostic communication when children with poor-prognosis cancer experience prolonged disease stability. Pediatr Blood Cancer. 2023 01; 70(1):e29920.
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Patient, Family, and Clinician Perspectives on Location of Death for Adolescents and Young Adults With Cancer. JCO Oncol Pract. 2022 10; 18(10):e1621-e1629.
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Mismatch between Pediatric Oncologists' Private and Parent-Facing Prognostic Communication: Communication Patterns Used to Soften Prognostic Disclosure. J Palliat Med. 2023 02; 26(2):210-219.
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Cancer treatment decision-making among parents of paediatric oncology patients in Guatemala: a mixed-methods study. BMJ Open. 2022 08 11; 12(8):e057350.
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Validity and reliability of the Japanese version of the Peace, Equanimity, and Acceptance in the Cancer Experience (PEACE) questionnaire. Palliat Support Care. 2022 08; 20(4):549-555.
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Thinking globally to improve care locally: A Delphi study protocol to achieve international clinical consensus on best-practice end-of-life communication with adolescents and young adults with cancer. PLoS One. 2022; 17(7):e0270797.
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Silence in Conversations About Advancing Pediatric Cancer. Front Oncol. 2022; 12:894586.
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Co-management of communication and care in adolescent and young adult oncology. Pediatr Blood Cancer. 2022 10; 69(10):e29813.
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The Art of Saying Nothing. Pediatrics. 2022 Jun 01; 149(6).
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Factors Affecting Hospice Use Among Adolescents and Young Adult Cancer Patients. J Adolesc Young Adult Oncol. 2022 May 27.
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Pediatric Concurrent Hospice Care: Cost Implications of a Hybrid Payment Model. Am J Hosp Palliat Care. 2022 Dec; 39(12):1436-1442.
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A Framework for Promoting Diversity, Equity, and Inclusion in Genetics and Genomics Research. JAMA Health Forum. 2022 04; 3(4).
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Lack of Concordance in Symptomatic Adverse Event Reporting by Children, Clinicians, and Caregivers: Implications for Cancer Clinical Trials. J Clin Oncol. 2022 05 20; 40(15):1623-1634.
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Patterns of Healthcare Services Among Children With Advanced Cancer in Concurrent Hospice Care. Cancer Nurs. 2022 Nov-Dec 01; 45(6):E843-E848.
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A National Study to Compare Effective Management of Constipation in Children Receiving Concurrent Versus Standard Hospice Care. J Hosp Palliat Nurs. 2022 02 01; 24(1):70-77.
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Interdependent functions of communication with adolescents and young adults in oncology. Pediatr Blood Cancer. 2022 04; 69(4):e29588.
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Health Literacy and Clinical Outcomes Following Hematopoietic Stem-Cell Transplantation. JCO Oncol Pract. 2022 06; 18(6):e857-e868.
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Missing Voices: Lessons Learned from Nonparticipating Caregivers in Palliative Care Research. J Palliat Med. 2022 03; 25(3):455-460.
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Racial and ethnic disparities in communication study enrollment for young people with cancer: A descriptive analysis of the literature. Patient Educ Couns. 2022 07; 105(7):2067-2073.
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Bereaved Caregivers Perspectives of Negative Communication Experiences Near the End of Life for Adolescents and Young Adults with Cancer. J Adolesc Young Adult Oncol. 2022 10; 11(5):498-505.
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Effectiveness of Pediatric Concurrent Hospice Care to Improve Continuity of Care. Am J Hosp Palliat Care. 2022 Oct; 39(10):1129-1136.
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Early parental knowledge of late effect risks in children with cancer. Pediatr Blood Cancer. 2022 02; 69(2):e29473.
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Acceptable, hopeful, and useful: development and mixed-method evaluation of an educational tool about reproductive options for people with sickle cell disease or trait. J Assist Reprod Genet. 2022 Jan; 39(1):183-193.
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Parent and Clinician Perspectives on Challenging Parent-Clinician Relationships in Pediatric Oncology. JAMA Netw Open. 2021 11 01; 4(11):e2132138.
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Multilevel barriers and facilitators of communication in pediatric oncology: A systematic review. Pediatr Blood Cancer. 2022 01; 69(1):e29405.
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Thinking ahead: Parents' worries about late effects of childhood cancer treatment. Pediatr Blood Cancer. 2021 12; 68(12):e29335.
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Communication Priorities and Experiences of Caregivers of Children With Cancer in Guatemala. JCO Glob Oncol. 2021 09; 7:1529-1536.
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Broaching goals-of-care conversations in advancing pediatric cancer. Pediatr Blood Cancer. 2021 10; 68(10):e29270.
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Patient, Family, and Clinician Perspectives on End-of-Life Care Quality Domains and Candidate Indicators for Adolescents and Young Adults With Cancer. JAMA Netw Open. 2021 08 02; 4(8):e2121888.
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Facilitators Associated With Building and Sustaining Therapeutic Alliance in Advanced Pediatric Cancer. JAMA Netw Open. 2021 08 02; 4(8):e2120925.
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Communication around palliative care principles and advance care planning between oncologists, children with advancing cancer and families. Br J Cancer. 2021 10; 125(8):1089-1099.
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Who is coordinating pediatric concurrent hospice care? J Pain Symptom Manage. 2021 Nov; 62(5):e1-e4.
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A Reliability Generalization Meta-Analysis of 17 Patient-Reported Outcome Measures for Positive Psychosocial Constructs in Children, Adolescents, and Young Adults with Cancer. J Adolesc Young Adult Oncol. 2022 04; 11(2):163-172.
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Clinicians' Perspectives on the Functions of Communication in Pediatric Oncology. J Palliat Med. 2021 09; 24(10):1545-1549.
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Patients, caregivers, and clinicians differ in performance status ratings: Implications for pediatric cancer clinical trials. Cancer. 2021 10 01; 127(19):3664-3670.
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Factors related to specialized palliative care use and aggressive care at end of life in Japanese patients with advanced solid cancers: a cohort study. Support Care Cancer. 2021 Dec; 29(12):7805-7813.
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A National Profile of Children Receiving Pediatric Concurrent Hospice Care, 2011 to 2013. J Hosp Palliat Nurs. 2021 06 01; 23(3):214-220.
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Differences in characteristics of children with cancer who receive standard versus concurrent hospice care. Pediatr Blood Cancer. 2021 09; 68(9):e29106.
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Evaluation of Patient-Reported Outcome Measures of Positive Psychosocial Constructs in Children and Adolescent/Young Adults with Cancer: A Systematic Review of Measurement Properties. J Adolesc Young Adult Oncol. 2022 02; 11(1):78-94.
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Conflicting goals and obligations: Tensions affecting communication in pediatric oncology. Patient Educ Couns. 2022 01; 105(1):56-61.
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Prognostic Communication Between Oncologists and Parents of Children With Advanced Cancer. Pediatrics. 2021 06; 147(6).
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The evolution of parents' beliefs about childhood cancer during diagnostic communication: a qualitative study in Guatemala. BMJ Glob Health. 2021 05; 6(5).
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"What Matters to Me": What pediatric stem cell transplant patients want their providers to know. J Psychosoc Oncol. 2021; 39(4):586-593.
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"Don't be afraid to speak up": Communication advice from parents and clinicians of children with cancer. Pediatr Blood Cancer. 2021 08; 68(8):e29052.
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Assume It Will Break: Parental Perspectives on Negative Communication Experiences in Pediatric Oncology. JCO Oncol Pract. 2021 06; 17(6):e859-e871.
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Medical complexity and concurrent hospice care: A national study of Medicaid children from 2011 to 2013. J Spec Pediatr Nurs. 2021 10; 26(4):e12333.
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Caregiver Reported Quality of End-of-Life Care of Adolescent and Young Adult Decedents With Cancer. J Palliat Care. 2022 Apr; 37(2):87-92.
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Multilevel barriers to communication in pediatric oncology: Clinicians' perspectives. Cancer. 2021 06 15; 127(12):2130-2138.
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Barriers to Optimal End-of-Life Care for Adolescents and Young Adults With Cancer: Bereaved Caregiver Perspectives. J Natl Compr Canc Netw. 2021 May; 19(5):528-533.
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Parental views on communication between children and clinicians in pediatric oncology: a qualitative study. Support Care Cancer. 2021 Sep; 29(9):4957-4968.
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Patients' understanding of communication about palliative care and health condition in Japanese patients with unresectable or recurrent cancer: a cross-sectional survey. Ann Palliat Med. 2021 Mar; 10(3):2650-2661.
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Identification of Evidence for Key Positive Psychological Constructs in Pediatric and Adolescent/Young Adult Patients with Cancer: A Scoping Review. J Adolesc Young Adult Oncol. 2021 06; 10(3):247-259.
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Validation of the caregiver Pediatric Patient-Reported Outcomes Version of the Common Terminology Criteria for Adverse Events measure. Cancer. 2021 05 01; 127(9):1483-1494.
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Interdisciplinary care of pediatric oncology patients in Central America and the Caribbean. Cancer. 2021 07 15; 127(14):2579-2586.
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Agreement Between Child Self-report and Caregiver-Proxy Report for Symptoms and Functioning of Children Undergoing Cancer Treatment. JAMA Pediatr. 2020 11 01; 174(11):e202861.
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Validity and Reliability of the Pediatric Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events. J Natl Cancer Inst. 2020 11 01; 112(11):1143-1152.
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Alveolar rhabdomyosarcoma presenting as a pleural effusion: An atypical presentation of a malignancy. Pediatr Pulmonol. 2020 12; 55(12):3231-3233.
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Subjective Toxicity Profiles of Children in Treatment for Cancer: A New Guide to Supportive Care? J Pain Symptom Manage. 2021 06; 61(6):1188-1195.e2.
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Characteristics of uncertainty in advanced pediatric cancer conversations. Patient Educ Couns. 2021 05; 104(5):1066-1074.
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Variation In State Medicaid Implementation Of The ACA: The Case Of Concurrent Care For Children. Health Aff (Millwood). 2020 10; 39(10):1770-1775.
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Pediatric cancer communication in low- and middle-income countries: A scoping review. Cancer. 2020 12 01; 126(23):5030-5039.
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Communication in Pediatric Oncology: A Qualitative Study. Pediatrics. 2020 09; 146(3).
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Care experiences that foster trust between parents and physicians of children with cancer. Pediatr Blood Cancer. 2020 11; 67(11):e28399.
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Exercise and Well-being in Adult Survivors of Childhood Cancer-Time for Interventions. JAMA Oncol. 2020 08 01; 6(8):1170-1171.
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Role of Surgery in Rhabdomyosarcoma of the Head and Neck in Children. Laryngoscope. 2021 03; 131(3):E984-E992.
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The use of interval-compressed chemotherapy with the addition of vincristine, irinotecan, and temozolomide for pediatric patients with newly diagnosed desmoplastic small round cell tumor. Pediatr Blood Cancer. 2020 10; 67(10):e28559.
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Impact of cancer on school, work, and financial independence among adolescents and young adults. Cancer. 2020 10 01; 126(19):4400-4406.
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Qualitative Study of Pediatric Early Warning Systems' Impact on Interdisciplinary Communication in Two Pediatric Oncology Hospitals With Varying Resources. JCO Glob Oncol. 2020 07; 6:1079-1086.
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Pediatric Concurrent Hospice Care: A Scoping Review and Directions for Future Nursing Research. J Hosp Palliat Nurs. 2020 06; 22(3):238-245.
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Early information needs of adolescents and young adults about late effects of cancer treatment. Cancer. 2020 07 15; 126(14):3281-3288.
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Racial and Ethnic Differences in Communication and Care for Children With Advanced Cancer. J Pain Symptom Manage. 2020 10; 60(4):782-789.
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Parental Considerations Regarding Cure and Late Effects for Children With Cancer. Pediatrics. 2020 05; 145(5).
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Humour and laughing in patients with prolonged incurable cancer: an ethnographic study in a comprehensive cancer centre. Qual Life Res. 2020 Sep; 29(9):2425-2434.
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Psychosocial care for children receiving chimeric antigen receptor (CAR) T-cell therapy. Pediatr Blood Cancer. 2020 05; 67(5):e28249.
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Oncologists' Communication and Decision-Making Behaviors Affect Perceptions of Sensitive Information Exchange for Adolescent and Young Adult Patients. J Palliat Med. 2020 03; 23(3):310-311.
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Communication Regarding Therapeutic Clinical Trial Enrollment Between Oncologists and Adolescents and Young Adults with Cancer. J Adolesc Young Adult Oncol. 2020 10; 9(5):608-612.
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Teamwork in prognostic communication: Addressing bottlenecks and barriers. Pediatr Blood Cancer. 2020 05; 67(5):e28192.
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Expanding construct validity of established and new PROMIS Pediatric measures for children and adolescents receiving cancer treatment. Pediatr Blood Cancer. 2020 04; 67(4):e28160.
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On listening. Cancer. 2020 01 01; 126(9):1828-1831.
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Peace of mind among adolescents and young adults with cancer. Psychooncology. 2020 03; 29(3):572-578.
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Communication during childhood cancer: Systematic review of patient perspectives. Cancer. 2020 02 15; 126(4):701-716.
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End-of-life care among adolescent and young adult patients with cancer living in poverty. Cancer. 2020 02 15; 126(4):886-893.
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Emotional Communication in Advanced Pediatric Cancer Conversations. J Pain Symptom Manage. 2020 04; 59(4):808-817.e2.
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Helping parents prepare for their child's end of life: A retrospective survey of cancer-bereaved parents. Pediatr Blood Cancer. 2020 02; 67(2):e27993.
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Unrealistic parental expectations for cure in poor-prognosis childhood cancer. Cancer. 2020 01 15; 126(2):416-424.
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Longitudinal prognostic communication needs of adolescents and young adults with cancer. Cancer. 2020 01 15; 126(2):400-407.
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Mapping child and adolescent self-reported symptom data to clinician-reported adverse event grading to improve pediatric oncology care and research. Cancer. 2020 01 01; 126(1):140-147.
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Communication interventions in adult and pediatric oncology: A scoping review and analysis of behavioral targets. PLoS One. 2019; 14(8):e0221536.
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Racial and Ethnic Differences in Parental Decision-Making Roles in Pediatric Oncology. J Palliat Med. 2020 02; 23(2):192-197.
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Knowing versus doing: The value of behavioral change models for emotional communication in oncology. Patient Educ Couns. 2019 12; 102(12):2344-2348.
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Recovery of offline and online sentence processing in aphasia: Language and domain-general network neuroplasticity. Cortex. 2019 11; 120:394-418.
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The evolution of regret: decision-making for parents of children with cancer. Support Care Cancer. 2020 Mar; 28(3):1215-1222.
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Things that matter: Adolescent and young adult patients' priorities during cancer care. Pediatr Blood Cancer. 2019 09; 66(9):e27883.
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Effective Communication for Newly Diagnosed Pediatric Patients With Cancer: Considerations for the Patients, Family Members, Providers, and Multidisciplinary Team. Am Soc Clin Oncol Educ Book. 2019 Jan; 39:573-581.
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Adolescent and Young Adult Cancer Patients' Experiences With Treatment Decision-making. Pediatrics. 2019 05; 143(5).
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How Do Blood Cancer Doctors Discuss Prognosis? Findings from a National Survey of Hematologic Oncologists. J Palliat Med. 2019 06; 22(6):677-684.
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The genomic history of the Iberian Peninsula over the past 8000 years. Science. 2019 03 15; 363(6432):1230-1234.
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Mucoepidermoid carcinoma of the head and neck in children. Int J Pediatr Otorhinolaryngol. 2019 May; 120:93-99.
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Inclusion of children in the initial conversation about their cancer diagnosis: impact on parent experiences of the communication process. Support Care Cancer. 2019 Apr; 27(4):1319-1324.
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Duality of purpose: Participant and parent understanding of the purpose of genomic tumor profiling research among children and young adults with solid tumors. JCO Precis Oncol. 2019; 3.
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Persistently low peace of mind in parents of cancer patients: A five-year follow-up study. Pediatr Blood Cancer. 2019 05; 66(5):e27609.
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Decisional burden among parents of children with cancer. Cancer. 2019 04 15; 125(8):1365-1372.
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Squamous cell carcinoma of the head and neck in children. Int J Pediatr Otorhinolaryngol. 2019 Feb; 117:131-137.
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Parental distress and desire for information regarding long-term implications of pediatric cancer treatment. Cancer. 2018 12 01; 124(23):4529-4537.
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Patient perceptions of curability and physician-reported disclosures of incurability in Japanese patients with unresectable/recurrent cancer: a cross-sectional survey. Jpn J Clin Oncol. 2018 Oct 01; 48(10):913-919.
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The PRISM intervention for adolescents and young adults with cancer: Paying attention to the patient as a whole person. Cancer. 2018 10 01; 124(19):3802-3805.
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Pediatric vincristine-related vocal fold paralysis. Int J Pediatr Otorhinolaryngol. 2018 11; 114:166-169.
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Closing the Gap on Pediatric Palliative Oncology Disparities. Semin Oncol Nurs. 2018 08; 34(3):294-302.
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How Should We Enhance the Process and Purpose of Prognostic Communication in Oncology? AMA J Ethics. 2018 08 01; 20(8):E757-765.
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Communication About Prognosis With Adolescent and Young Adult Patients With Cancer: Information Needs, Prognostic Awareness, and Outcomes of Disclosure. J Clin Oncol. 2018 06 20; 36(18):1861-1867.
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Parent understanding of the risk of future limitations secondary to pediatric cancer treatment. Pediatr Blood Cancer. 2018 07; 65(7):e27020.
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Reply to: Comment on: Adolescent patient involvement in discussions about relapsed or refractory cancer with oncology clinicians. Pediatr Blood Cancer. 2018 07; 65(7):e27049.
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Reply to Cross-cultural communication in pediatric oncology: Catch them when they're young. Cancer. 2018 04 01; 124(7):1517.
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Parent perspectives on information about late effects of childhood cancer treatment and their role in initial treatment decision making. Pediatr Blood Cancer. 2018 06; 65(6):e26978.
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Sources of parental hope in pediatric oncology. Pediatr Blood Cancer. 2018 06; 65(6):e26981.
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Intended and unintended consequences: Ethics, communication, and prognostic disclosure in pediatric oncology. Cancer. 2018 03 15; 124(6):1232-1241.
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Adolescent patient involvement in discussions about relapsed or refractory cancer with oncology clinicians. Pediatr Blood Cancer. 2018 04; 65(4).
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How Parents of Children With Cancer Learn About Their Children's Prognosis. Pediatrics. 2018 01; 141(1).
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Child and adolescent self-report symptom measurement in pediatric oncology research: a systematic literature review. Qual Life Res. 2018 02; 27(2):291-319.
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Disparities in prognosis communication among parents of children with cancer: The impact of race and ethnicity. Cancer. 2017 Oct 15; 123(20):3995-4003.
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Evaluation of Patient and Family Outpatient Complaints as a Strategy to Prioritize Efforts to Improve Cancer Care Delivery. Jt Comm J Qual Patient Saf. 2017 Oct; 43(10):498-507.
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A Research Agenda for Communication Between Health Care Professionals and Patients Living With Serious Illness. JAMA Intern Med. 2017 09 01; 177(9):1361-1366.
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Pediatric Palliative Care-A Shared Priority. JAMA Oncol. 2017 09 01; 3(9):1220-1221.
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Longitudinal parental preferences for late effects communication during cancer treatment. Pediatr Blood Cancer. 2018 Jan; 65(1).
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Communication in pediatric oncology: State of the field and research agenda. Pediatr Blood Cancer. 2018 Jan; 65(1).
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Fatalism and educational disparities in beliefs about the curability of advanced cancer. Patient Educ Couns. 2018 Jan; 101(1):113-118.
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How a Child With Cancer Moved From Vulnerability to Resilience. J Clin Oncol. 2017 09 20; 35(27):3169-3171.
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Holding hope. Pediatr Blood Cancer. 2017 09; 64(9).
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Prognostic disclosures over time: Parental preferences and physician practices. Cancer. 2017 Oct 15; 123(20):4031-4038.
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Cognitive Interview-Based Validation of the Patient-Reported Outcomes Version of the Common Terminology Criteria for Adverse Events in Adolescents with Cancer. J Pain Symptom Manage. 2017 04; 53(4):759-766.
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Development of quality indicators for transition from pediatric to adult care in sickle cell disease: A modified Delphi survey of adult providers. Pediatr Blood Cancer. 2017 06; 64(6).
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Communication preferences of pediatric cancer patients: talking about prognosis and their future life. Support Care Cancer. 2017 03; 25(3):769-774.
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Difficult relationships between parents and physicians of children with cancer: A qualitative study of parent and physician perspectives. Cancer. 2017 02 15; 123(4):675-681.
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Decisional Regret Among Parents of Children With Cancer. J Clin Oncol. 2016 11 20; 34(33):4023-4029.
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Eliciting the child's voice in adverse event reporting in oncology trials: Cognitive interview findings from the Pediatric Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events initiative. Pediatr Blood Cancer. 2017 03; 64(3).
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Prognostic Disclosures to Children: A Historical Perspective. Pediatrics. 2016 09; 138(3).
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What Adult Cancer Care Can Learn From Pediatrics. J Oncol Pract. 2016 09; 12(9):765-7.
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Care in the Final Month of Life among Adolescent and Young Adult Cancer Patients in Kaiser Permanente Southern California. J Palliat Med. 2016 11; 19(11):1136-1141.
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Patient/parent perspectives on genomic tumor profiling of pediatric solid tumors: The Individualized Cancer Therapy (iCat) experience. Pediatr Blood Cancer. 2016 11; 63(11):1974-82.
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Home care for children with multiple complex chronic conditions at the end of life: The choice of hospice versus home health. Home Health Care Serv Q. 2016 Jul-Dec; 35(3-4):101-111.
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Parental preparedness for late effects and long-term quality of life in survivors of childhood cancer. Cancer. 2016 08 15; 122(16):2587-94.
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Lower Patient Ratings of Physician Communication Are Associated With Unmet Need for Symptom Management in Patients With Lung and Colorectal Cancer. J Oncol Pract. 2016 06; 12(6):e654-69.
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"Don't Try to Cover the Sky with Your Hands": Parents' Experiences with Prognosis Communication About Their Children with Advanced Cancer. J Palliat Med. 2016 06; 19(6):626-31.
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Communication Skills Training in Pediatric Oncology: Moving Beyond Role Modeling. Pediatr Blood Cancer. 2016 Jun; 63(6):966-72.
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Clusters of Multiple Complex Chronic Conditions: A Latent Class Analysis of Children at End of Life. J Pain Symptom Manage. 2016 05; 51(5):868-74.
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Severe Tumor Lysis Syndrome and Acute Pulmonary Edema Requiring Extracorporeal Membrane Oxygenation Following Initiation of Chemotherapy for Metastatic Alveolar Rhabdomyosarcoma. Pediatr Blood Cancer. 2016 May; 63(5):928-30.
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Young Adult Perspectives on a Successful Transition from Pediatric to Adult Care in Sickle Cell Disease. J Hematol Res. 2015 Dec; 2(1):17-24.
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High Intensity of End-of-Life Care Among Adolescent and Young Adult Cancer Patients in the New York State Medicaid Program. Med Care. 2015 Dec; 53(12):1018-26.
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Intensity of Medical Interventions between Diagnosis and Death in Patients with Advanced Lung and Colorectal Cancer: A CanCORS Analysis. J Palliat Med. 2016 Jan; 19(1):42-50.
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Cancer treatment decision-making among young adults with lung and colorectal cancer: a comparison with adults in middle age. Psychooncology. 2016 09; 25(9):1085-91.
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Deeper Conversations Need Not Wait Until the End. J Clin Oncol. 2015 Nov 20; 33(33):3974.
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End-of-Life Care Intensity Among Adolescent and Young Adult Patients With Cancer in Kaiser Permanente Southern California. JAMA Oncol. 2015 Aug; 1(5):592-600.
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Parental hope for children with advanced cancer. Pediatrics. 2015 May; 135(5):868-74.
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Association of Actual and Preferred Decision Roles With Patient-Reported Quality of Care: Shared Decision Making in Cancer Care. JAMA Oncol. 2015 Apr; 1(1):50-8.
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When to say when: How aggressively to care for children with multiply relapsed cancer? Pediatr Blood Cancer. 2015 Jul; 62(7):1119-20.
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The role of families in decisions regarding cancer treatments. Cancer. 2015 Apr 01; 121(7):1079-87.
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Patient beliefs that chemotherapy may be curative and care received at the end of life among patients with metastatic lung and colorectal cancer. Cancer. 2015 Jun 01; 121(11):1891-7.
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Association of lower patient ratings of physician communication with need for symptom management in lung and colorectal cancer patients. J Clin Oncol. 2014 Nov; 32(31_suppl):153.
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Pediatric hospice and palliative care: designing a mobile app for clinical practice. Comput Inform Nurs. 2014 Jul; 32(7):299-302.
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Symptom prevalence in lung and colorectal cancer patients. J Pain Symptom Manage. 2015 Feb; 49(2):192-202.
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Physicians' propensity to discuss prognosis is associated with patients' awareness of prognosis for metastatic cancers. J Palliat Med. 2014 Jun; 17(6):673-82.
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Evaluating the quality of supportive oncology using patient-reported data. J Oncol Pract. 2014 Jul; 10(4):e223-30.
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Communicating about prognosis: ethical responsibilities of pediatricians and parents. Pediatrics. 2014 Feb; 133 Suppl 1:S24-30.
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Deliberation and the life cycle of informed consent. Hastings Cent Rep. 2014 Jan-Feb; 44(1):33-5.
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Parent perceptions of the quality of information received about a child's cancer. Pediatr Blood Cancer. 2013 Nov; 60(11):1896-901.
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Underuse of hospice care by Medicaid-insured patients with stage IV lung cancer in New York and California. J Clin Oncol. 2013 Jul 10; 31(20):2569-79.
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The presentation and management of mandibular tumors in the pediatric population. Laryngoscope. 2013 Aug; 123(8):2035-42.
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Talking with patients about dying. N Engl J Med. 2013 01 31; 368(5):480-1.
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Evaluating the quality of supportive oncology using patient-reported survey data. J Clin Oncol. 2012 Dec; 30(34_suppl):42.
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Associations between end-of-life discussion characteristics and care received near death: a prospective cohort study. J Clin Oncol. 2012 Dec 10; 30(35):4387-95.
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Patients' expectations about effects of chemotherapy for advanced cancer. N Engl J Med. 2012 Oct 25; 367(17):1616-25.
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Profit status and delivery of hospice care for infants: the mediating role of pediatric knowledge. J Palliat Med. 2012 Dec; 15(12):1369-73.
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Selecting ambulatory emergency care (AEC) patients from the medical emergency in-take: the derivation and validation of the Amb score. Clin Med (Lond). 2012 Oct; 12(5):420-6.
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Enough is indeed enough: ACGME required changes in pediatric training. Pediatr Blood Cancer. 2012 Dec 15; 59(7):1158-9.
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Reasons why physicians do not have discussions about poor prognosis, why it matters, and what can be improved. J Clin Oncol. 2012 Aug 01; 30(22):2715-7.
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Improving timeliness of antibiotic delivery for patients with fever and suspected neutropenia in a pediatric emergency department. Pediatrics. 2012 Jul; 130(1):e201-10.
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Research participation experiences of parents of children with cancer who were asked about their child's prognosis. J Palliat Med. 2012 Mar; 15(3):269-73.
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End-of-life care discussions among patients with advanced cancer: a cohort study. Ann Intern Med. 2012 Feb 07; 156(3):204-10.
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Communication and decision support for children with advanced cancer and their families. Am Soc Clin Oncol Educ Book. 2012; 637-43.
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Discussions about end-of-life care planning between physicians and patients with stage IV lung or colorectal cancer. J Clin Oncol. 2011 May 20; 29(15_suppl):6026.
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Parents' roles in decision making for children with cancer in the first year of cancer treatment. J Clin Oncol. 2011 May 20; 29(15):2085-90.
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Influence of patients' preferences and treatment site on cancer patients' end-of-life care. Cancer. 2010 Oct 01; 116(19):4656-63.
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Training program in cancer and blood diseases: Pediatric Hematology/Oncology Fellowship Program, Children's Hospital Boston/Dana-Farber Cancer Institute. Am J Hematol. 2010 Oct; 85(10):793-4.
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Racial disparities in the outcomes of communication on medical care received near death. Arch Intern Med. 2010 Sep 27; 170(17):1533-40.
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Absorbing information about a child's incurable cancer. Oncology. 2010; 78(3-4):259-66.
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End-of-life discussions, goal attainment, and distress at the end of life: predictors and outcomes of receipt of care consistent with preferences. J Clin Oncol. 2010 Mar 01; 28(7):1203-8.
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Sinonasal and laryngeal carcinoma in children: correlation of imaging characteristics with clinicopathologic and cytogenetic features. AJNR Am J Neuroradiol. 2010 Feb; 31(2):257-61.
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Measuring therapeutic alliance between oncologists and patients with advanced cancer: the Human Connection Scale. Cancer. 2009 Jul 15; 115(14):3302-11.
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Peace of mind and sense of purpose as core existential issues among parents of children with cancer. Arch Pediatr Adolesc Med. 2009 Jun; 163(6):519-24.
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Personalized end-of-life care: Associations between patient preferences and treatment intensity near death. J Clin Oncol. 2009 May 20; 27(15_suppl):6516.
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Associations between end-of-life discussions, patient mental health, medical care near death, and caregiver bereavement adjustment. JAMA. 2008 Oct 08; 300(14):1665-73.
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Parents' views of cancer-directed therapy for children with no realistic chance for cure. J Clin Oncol. 2008 Oct 10; 26(29):4759-64.
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A qualitative study of oncologists' approaches to end-of-life care. J Palliat Med. 2008 Jul; 11(6):893-906.
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Peace, Equanimity, and Acceptance in the Cancer Experience (PEACE): validation of a scale to assess acceptance and struggle with terminal illness. Cancer. 2008 Jun; 112(11):2509-17.
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Peace of mind and sense of purpose as core existential issues among parents of children with cancer. J Clin Oncol. 2008 May 20; 26(15_suppl):9518.
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Hope and prognostic disclosure. J Clin Oncol. 2007 Dec 10; 25(35):5636-42.
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Common gastrointestinal symptoms in pediatric palliative care: nausea, vomiting, constipation, anorexia, cachexia. Pediatr Clin North Am. 2007 Oct; 54(5):673-89, x.
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Quality of health care for children: role of health and chronic illness in inpatient care experiences. Arch Pediatr Adolesc Med. 2007 Sep; 161(9):828-34.
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Understanding of prognosis among parents of children with cancer: parental optimism and the parent-physician interaction. J Clin Oncol. 2007 Apr 10; 25(11):1357-62.
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Communication about prognosis between parents and physicians of children with cancer: parent preferences and the impact of prognostic information. J Clin Oncol. 2006 Nov 20; 24(33):5265-70.
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Understanding of prognosis among parents of children with cancer: Parental optimism and the role of the parent-physician interaction. J Clin Oncol. 2006 Jun 20; 24(18_suppl):6033.
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Mucoepidermoid carcinoma of the parotid gland in children: A 10-year experience. Arch Otolaryngol Head Neck Surg. 2006 Apr; 132(4):375-80.
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Early integration of pediatric palliative care: for some children, palliative care starts at diagnosis. Curr Opin Pediatr. 2006 Feb; 18(1):10-4.
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Can end of life care for the pediatric patient suffering with escalating and intractable symptoms be improved? J Pediatr Oncol Nurs. 2006 Jan-Feb; 23(1):45-51.
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Parent and physician perspectives on quality of care at the end of life in children with cancer. J Clin Oncol. 2005 Dec 20; 23(36):9155-61.
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Factors associated with the quality of care at the end of life in children with cancer. J Clin Oncol. 2004 Jul 15; 22(14_suppl):8529.
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The Day One Talk. J Clin Oncol. 2004 Feb 01; 22(3):563-6.
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Iatrogenic pleuropulmonary charcoal instillation in a teenager. Pediatr Pulmonol. 2003 Jun; 35(6):490-3.
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Pulmonary hypertension in systemic lupus erythematosus. N Engl J Med. 1973 Jul 19; 289(3):157-8.
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