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Joanne Wolfe, MD, MPH


Palliative Medicine

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Physician

  • Faculty Vice President for Faculty Development, Dana-Farber Cancer Institute
  • Institute Physician
  • Professor of Pediatrics, Harvard Medical School

Centers/Programs

Clinical Interests

  • Pediatric palliative care
  • Symptom management

Contact Information

  • Appointments617-632-5042
  • Office Phone Number617-632-5286
  • Fax617-582-7271

Bio

Dr. Joanne Wolfe is Faculty Vice President for Faculty Development at Dana-Farber Cancer Institute. She is a Professor of Pediatrics at Harvard Medical School. She is board certified in Hospice and Palliative Medicine and Pediatric Hematology/Oncology. Dr. Wolfe is internationally recognized for her pediatric palliative care expertise and her research focuses on improving care for children with advanced illness.

Board Certification:

  • Hospice and Palliative Medicine, 2008
  • Palliative Medicine, 2004
  • Pediatric Hematology/Oncology
  • Pediatrics

Fellowship:

  • Boston Children's Hospital/Dana-Farber Cancer Institute, Pediatric Hematology/Oncology

Residency:

  • Boston Combined Residency Program, Boston Children's Hospital/Boston Medical Center, Pediatrics

Medical School:

  • Harvard Medical School

Recent Awards:

  • Citation of Honor, Circle of Life Award 2001
  • American Cancer Society Pathfinder in Palliative Care Award 2013
  • Schwartz Center Compassionate Caregiver Finalist 2003, 2009

Research

Dr. Wolfe's research is focused on easing suffering and promoting well-being in children with serious illnesses and their families. Using PediQUEST, a computerized data collection system, she completed a multicentered randomized trial aimed at assessing the effect of routinely providing child-reported symptom and quality-of-life feedback to clinicians and families. She found that feedback promotes child psychological well-being. PediQUEST is now web-based and is useful in all care settings, including the home. Using this adaptation, she will study a strengthened intervention, PediQUEST Champions, adding a clinician whose mandate it is to respond to child distress. She also mentors junior investigators focusing on additional domains of distress including financial hardship, the stem cell transplant experience and resilience. Finally, she co-directs an emerging pediatric palliative care research network, "Peppercorn."

Are we undermining the value of palliative care through advanced cancer clinical trial consent language? Cancer. 2021 Mar 10.
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"We're Performing Improvisational Jazz": Interprofessional Pediatric Palliative Care Fellowship Prepares Trainees for Team-Based Collaborative Practice. J Pain Symptom Manage. 2021 Feb 15.
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A Stakeholder-Driven Qualitative Study to Define High Quality End-of-Life Care for Children With Cancer. J Pain Symptom Manage. 2021 Feb 05.
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Prioritization of Pediatric Palliative Care Field-Advancement Activities in the United States: Results of a National Survey. J Pain Symptom Manage. 2021 Jan 22.
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Feasibility and acceptability of the "Day 100 Talk": An interdisciplinary communication intervention during the first six months of childhood cancer treatment. Cancer. 2021 Apr 01; 127(7):1134-1145.
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Weighing Distress and Benefit: Understanding the Research Participation Experiences of Bereaved Parents of Children With Complex Chronic Conditions. J Pain Symptom Manage. 2020 Dec 04.
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Parental Perceptions of Hospital-Based Bereavement Support Following a Child's Death From Cancer: Room for Improvement. J Pain Symptom Manage. 2020 Nov 14.
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Spanish Adaptation of the Pediatric Memorial Symptom Assessment Scale for Children, Teens, and Caregivers. J Pain Symptom Manage. 2020 Oct 28.
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MyPref: pilot study of a novel communication and decision-making tool for adolescents and young adults with advanced cancer. Support Care Cancer. 2020 Oct 08.
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Identification of adolescents and young adults' preferences and priorities for future cancer treatment using a novel decision-making tool. Pediatr Blood Cancer. 2021 01; 68(1):e28755.
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Engaging Parents of Children Who Died From Cancer in Research on the Early Grief Experience. J Pain Symptom Manage. 2021 Apr; 61(4):781-788.
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To Disclose or Not to Disclose: A Case Highlighting the Challenge of Conflicts in Pediatric Disclosure. J Pain Symptom Manage. 2021 01; 61(1):211-215.
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Definitely Mixed Feelings: The Effect of COVID-19 on Bereavement in Parents of Children Who Died of Cancer. J Pain Symptom Manage. 2020 Nov; 60(5):e15-e20.
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Parent Perceptions of Team-Delivered Care for Children With Advanced Cancer: A Report From the PediQUEST Study. J Pain Symptom Manage. 2020 10; 60(4):811-817.
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Paediatric palliative care research has come of age. Palliat Med. 2020 03; 34(3):259-261.
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Pediatric Palliative Care in Oncology. J Clin Oncol. 2020 03 20; 38(9):954-962.
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Hospital or Home? Where Should Children Die and How Do We Make That a Reality? J Pain Symptom Manage. 2020 07; 60(1):106-115.
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Reconsidering early parental grief following the death of a child from cancer: a new framework for future research and bereavement support. Support Care Cancer. 2020 Sep; 28(9):4131-4139.
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Response to Suffering of the Seriously Ill Child: A History of Palliative Care for Children. Pediatrics. 2020 01; 145(1).
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Palliative radiotherapy for pediatric patients: Parental perceptions of indication, intent, and outcomes. Pediatr Blood Cancer. 2020 01; 67(1):e28003.
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Challenges and Priorities for Pediatric Palliative Care Research in the U.S. and Similar Practice Settings: Report From a Pediatric Palliative Care Research Network Workshop. J Pain Symptom Manage. 2019 11; 58(5):909-917.e3.
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Impact of Specialized Pediatric Palliative Care: A Systematic Review. J Pain Symptom Manage. 2020 02; 59(2):339-364.e10.
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Models of Pediatric Palliative Oncology Outpatient Care-Benefits, Challenges, and Opportunities. J Oncol Pract. 2019 09; 15(9):476-487.
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Development of a Pediatric Palliative Care Curriculum and Dissemination Model: Education in Palliative and End-of-Life Care (EPEC) Pediatrics. J Pain Symptom Manage. 2019 10; 58(4):707-720.e3.
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Experience of parents receiving results from a quality-of-life study in pediatric advanced cancer: A report from the PediQUEST study. Pediatr Blood Cancer. 2019 09; 66(9):e27880.
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"What if?": Addressing uncertainty with families. Pediatr Blood Cancer. 2019 06; 66(6):e27699.
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Communication about prognosis and end-of-life in pediatric organ failure and transplantation. Pediatr Transplant. 2019 05; 23(3):e13373.
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Pediatric Palliative Care in the Multicultural Context: Findings From a Workshop Conference. J Pain Symptom Manage. 2019 04; 57(4):846-855.e2.
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Advance Care Planning and Parent-Reported End-of-Life Outcomes in Children, Adolescents, and Young Adults With Complex Chronic Conditions. Crit Care Med. 2019 01; 47(1):101-108.
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Specialized pediatric palliative care services for children dying from cancer: A repeated cohort study on the developments of symptom management and quality of care over a 10-year period. Palliat Med. 2019 03; 33(3):381-391.
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Identifying and Quantifying Adolescent and Young Adult Patient Preferences in Cancer Care: Development of a Conjoint Analysis-Based Decision-Making Tool. J Adolesc Young Adult Oncol. 2019 04; 8(2):212-216.
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Integrating palliative and oncology care: paediatric considerations. Lancet Oncol. 2018 11; 19(11):e572-e573.
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Top Ten Tips Palliative Care Clinicians Should Know About Caring for Children. J Palliat Med. 2018 12; 21(12):1783-1789.
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Hope and benefit finding: Results from the PRISM randomized controlled trial. Pediatr Blood Cancer. 2019 01; 66(1):e27485.
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Promoting resilience in adolescents and young adults with cancer: Results from the PRISM randomized controlled trial. Cancer. 2018 10 01; 124(19):3909-3917.
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Self-reported fatigue in children with advanced cancer: Results of the PediQUEST study. Cancer. 2018 09 15; 124(18):3776-3783.
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The relationship between household income and patient-reported symptom distress and quality of life in children with advanced cancer: A report from the PediQUEST study. Cancer. 2018 10 01; 124(19):3934-3941.
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Feasibility of systematic poverty screening in a pediatric oncology referral center. Pediatr Blood Cancer. 2018 12; 65(12):e27380.
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From the Child's Word to Clinical Intervention: Novel, New, and Innovative Approaches to Symptoms in Pediatric Palliative Care. Children (Basel). 2018 Mar 28; 5(4).
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Physician Perspectives on Palliative Care for Children with Advanced Heart Disease: A Comparison between Pediatric Cardiology and Palliative Care Physicians. J Palliat Med. 2018 06; 21(6):773-779.
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Development of the "Day 100 Talk": Addressing existing communication gaps during the early cancer treatment period in childhood cancer. Pediatr Blood Cancer. 2018 06; 65(6):e26972.
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Predictors of Specialized Pediatric Palliative Care Involvement and Impact on Patterns of End-of-Life Care in Children With Cancer. J Clin Oncol. 2018 03 10; 36(8):801-807.
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Provider Perspectives on Use of Medical Marijuana in Children With Cancer. Pediatrics. 2018 01; 141(1).
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Patterns of Care at the End of Life for Children and Young Adults with Life-Threatening Complex Chronic Conditions. J Pediatr. 2018 02; 193:196-203.e2.
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The Limitations of "How Are You Feeling?" J Pain Symptom Manage. 2018 03; 55(3):e6-e8.
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Hope, distress, and later quality of life among adolescent and young adults with cancer. J Psychosoc Oncol. 2018 Mar-Apr; 36(2):137-144.
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Discussions Across Disagreement: The Role for Simulation. J Palliat Med. 2017 10; 20(10):1050-1051.
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Household material hardship in families of children post-chemotherapy. Pediatr Blood Cancer. 2018 Jan; 65(1).
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Medical marijuana in pediatric oncology: A review of the evidence and implications for practice. Pediatr Blood Cancer. 2018 Feb; 65(2).
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Is There Ever a Role for the Unilateral Do Not Attempt Resuscitation Order in Pediatric Care? J Pain Symptom Manage. 2018 01; 55(1):164-171.
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Patterns and Outcomes of Care in Children With Advanced Heart Disease Receiving Palliative Care Consultation. J Pain Symptom Manage. 2018 02; 55(2):351-358.
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Strange Bedfellows No More: How Integrated Stem-Cell Transplantation and Palliative Care Programs Can Together Improve End-of-Life Care. J Oncol Pract. 2017 09; 13(9):569-577.
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Influence of early phase clinical trial enrollment on patterns of end-of-life care for children with advanced cancer. Pediatr Blood Cancer. 2018 Jan; 65(1).
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Approaching the third decade of paediatric palliative oncology investigation: historical progress and future directions. Lancet Child Adolesc Health. 2017 Sep; 1(1):56-67.
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Pediatric Cardiology Provider Attitudes About Palliative Care: A Multicenter Survey Study. Pediatr Cardiol. 2017 Oct; 38(7):1324-1331.
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The Validity of Using Health Administrative Data To Identify the Involvement of Specialized Pediatric Palliative Care Teams in Children with Cancer in Ontario, Canada. J Palliat Med. 2017 Nov; 20(11):1210-1216.
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Navigating Decisional Discord: The Pediatrician's Role When Child and Parents Disagree. Pediatrics. 2017 Jun; 139(6).
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Outcome Measurement for Children and Young People. J Palliat Med. 2017 04; 20(4):313.
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The Benefits and Burdens of Cancer: A Prospective Longitudinal Cohort Study of Adolescents and Young Adults. J Palliat Med. 2017 05; 20(5):494-501.
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Tumor Talk and Child Well-Being: Perceptions of "Good" and "Bad" News Among Parents of Children With Advanced Cancer. J Pain Symptom Manage. 2017 05; 53(5):833-841.
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The Impact of Cancer and its Treatment on the Growth and Development of the Pediatric Patient. Curr Pediatr Rev. 2017; 13(1):24-33.
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Ethics, Emotions, and the Skills of Talking About Progressing Disease With Terminally Ill Adolescents: A Review. JAMA Pediatr. 2016 12 01; 170(12):1216-1223.
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Predictors of and Trends in High-Intensity End-of-Life Care Among Children With Cancer: A Population-Based Study Using Health Services Data. J Clin Oncol. 2017 Jan 10; 35(2):236-242.
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Intimacy, Substance Use, and Communication Needs During Cancer Therapy: A Report From the "Resilience in Adolescents and Young Adults" Study. J Adolesc Health. 2017 01; 60(1):93-99.
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The benefits and burdens of cancer: A prospective, longitudinal cohort study of adolescents and young adults. J Clin Oncol. 2016 Oct 09; 34(26_suppl):243.
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Influence of early-phase clinical trial enrollment on patterns of end-of-life care for children with advanced cancer. J Clin Oncol. 2016 Oct 09; 34(26_suppl):151.
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Prognostic Disclosures to Children: A Historical Perspective. Pediatrics. 2016 09; 138(3).
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Pediatric Palliative Care and Child Psychiatry: A Model for Enhancing Practice and Collaboration. J Palliat Med. 2016 Oct; 19(10):1032-1038.
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Quality of Life in Children With Advanced Cancer: A Report From the PediQUEST Study. J Pain Symptom Manage. 2016 08; 52(2):243-53.
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Advancing a comprehensive cancer care agenda for children and their families: Institute of Medicine Workshop highlights and next steps. CA Cancer J Clin. 2016 09; 66(5):398-407.
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Impact of Socioeconomic Status on Timing of Relapse and Overall Survival for Children Treated on Dana-Farber Cancer Institute ALL Consortium Protocols (2000-2010). Pediatr Blood Cancer. 2016 Jun; 63(6):1012-8.
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End-of-Life Care Patterns Associated with Pediatric Palliative Care among Children Who Underwent Hematopoietic Stem Cell Transplant. Biol Blood Marrow Transplant. 2016 06; 22(6):1049-1055.
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Timeliness of End-of-Life Discussions for Blood Cancers: A National Survey of Hematologic Oncologists. JAMA Intern Med. 2016 Feb; 176(2):263-5.
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Communication Skills Training in Pediatric Oncology: Moving Beyond Role Modeling. Pediatr Blood Cancer. 2016 Jun; 63(6):966-72.
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Protocol: Evaluating the impact of a nation-wide train-the-trainer educational initiative to enhance the quality of palliative care for children with cancer. BMC Palliat Care. 2016 Jan 27; 15:12.
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Adolescent and Young Adult Patient Engagement and Participation in Survey-Based Research: A Report From the "Resilience in Adolescents and Young Adults With Cancer" Study. Pediatr Blood Cancer. 2016 Apr; 63(4):734-6.
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Palliative Care as a Standard of Care in Pediatric Oncology. Pediatr Blood Cancer. 2015 Dec; 62 Suppl 5:S829-33.
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Hospital Use in the Last Year of Life for Children With Life-Threatening Complex Chronic Conditions. Pediatrics. 2015 Nov; 136(5):938-46.
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Trajectory of Material Hardship and Income Poverty in Families of Children Undergoing Chemotherapy: A Prospective Cohort Study. Pediatr Blood Cancer. 2016 Jan; 63(1):105-11.
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Parent Outlook: How Parents View the Road Ahead as They Embark on Hematopoietic Stem Cell Transplantation for Their Child. Biol Blood Marrow Transplant. 2016 Jan; 22(1):104-11.
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Deeper Conversations Need Not Wait Until the End. J Clin Oncol. 2015 Nov 20; 33(33):3974.
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Pediatric Palliative Care in the Intensive Care Unit. Crit Care Nurs Clin North Am. 2015 Sep; 27(3):341-54.
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Research Priorities in Pediatric Palliative Care. J Pediatr. 2015 Aug; 167(2):467-70.e3.
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Symptoms and Distress in Children With Advanced Cancer: Prospective Patient-Reported Outcomes From the PediQUEST Study. J Clin Oncol. 2015 Jun 10; 33(17):1928-35.
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Differences in end-of-life communication for children with advanced cancer who were referred to a palliative care team. Pediatr Blood Cancer. 2015 Aug; 62(8):1409-13.
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Authors' response to van der Geest et al. J Pain Symptom Manage. 2015 May; 49(5):e7-9.
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Feasibility of Conducting a Palliative Care Randomized Controlled Trial in Children With Advanced Cancer: Assessment of the PediQUEST Study. J Pain Symptom Manage. 2015 Jun; 49(6):1059-69.
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Physician and parent perceptions of prognosis and end-of-life experience in children with advanced heart disease. J Palliat Med. 2015 Apr; 18(4):318-23.
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Improved quality of life at end of life related to home-based palliative care in children with cancer. J Palliat Med. 2015 Feb; 18(2):143-50.
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Prevalence and impact of financial hardship among New England pediatric stem cell transplantation families. Biol Blood Marrow Transplant. 2015 Feb; 21(2):312-8.
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Differences in parent-provider concordance regarding prognosis and goals of care among children with advanced cancer. J Clin Oncol. 2014 Sep 20; 32(27):3005-11.
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Supportive and palliative care of children with metabolic and neurological diseases. Curr Opin Support Palliat Care. 2014 Sep; 8(3):296-302.
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Caring for children living with life-threatening illness: a growing relationship between pediatric hospital medicine and pediatric palliative care. Pediatr Clin North Am. 2014 Aug; 61(4):xxi-xxiii.
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Long-term psychosocial outcomes among bereaved siblings of children with cancer. J Pain Symptom Manage. 2015 Jan; 49(1):55-65.
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What's missing in missing data? Omissions in survey responses among parents of children with advanced cancer. J Palliat Med. 2014 Aug; 17(8):953-6.
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Parental perspectives on suffering and quality of life at end-of-life in children with advanced heart disease: an exploratory study*. Pediatr Crit Care Med. 2014 May; 15(4):336-42.
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Improving the care of children with advanced cancer by using an electronic patient-reported feedback intervention: results from the PediQUEST randomized controlled trial. J Clin Oncol. 2014 Apr 10; 32(11):1119-26.
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Parent and clinician preferences for location of end-of-life care: home, hospital or freestanding hospice? Pediatr Blood Cancer. 2014 May; 61(5):859-64.
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Resilience and psychosocial outcomes in parents of children with cancer. Pediatr Blood Cancer. 2014 Mar; 61(3):552-7.
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Pediatric palliative care programs in children's hospitals: a cross-sectional national survey. Pediatrics. 2013 Dec; 132(6):1063-70.
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Clinician perspectives regarding the do-not-resuscitate order. JAMA Pediatr. 2013 Oct; 167(10):954-8.
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Did increased availability of pediatric palliative care lead to improved palliative care outcomes in children with cancer? J Palliat Med. 2013 Sep; 16(9):1034-9.
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Reply to A.H. Kamal. J Clin Oncol. 2013 Aug 20; 31(24):3047-8.
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Economic impact of advanced pediatric cancer on families. J Pain Symptom Manage. 2014 Mar; 47(3):594-603.
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Psychological distress in parents of children with advanced cancer. JAMA Pediatr. 2013 Jun; 167(6):537-43.
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Promoting resilience among parents and caregivers of children with cancer. J Palliat Med. 2013 Jun; 16(6):645-52.
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High symptom burden in children with cancer and high parental satisfaction: why the disconnect? Ann Palliat Med. 2013 Apr; 2(2):54-5.
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Palliative care for adolescents and young adults with cancer. Clin Oncol Adolesc Young Adults. 2013; 2013(3):41-48.
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Palliative care for children with cancer. Nat Rev Clin Oncol. 2013 Feb; 10(2):100-7.
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Moving toward quality palliative cancer care: parent and clinician perspectives on gaps between what matters and what is accessible. J Clin Oncol. 2013 Mar 01; 31(7):910-5.
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Complementary and alternative medicine use in children with cancer at the end of life. J Palliat Med. 2012 Nov; 15(11):1218-21.
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Patterns of care at end of life in children with advanced heart disease. Arch Pediatr Adolesc Med. 2012 Aug; 166(8):745-8.
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Children dying from cancer: parents' perspectives on symptoms, quality of life, characteristics of death, and end-of-life decisions. J Palliat Care. 2012; 28(4):274-81.
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Systematic review of psychosocial morbidities among bereaved parents of children with cancer. Pediatr Blood Cancer. 2012 Apr; 58(4):503-12.
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Pediatric palliative care patients: a prospective multicenter cohort study. Pediatrics. 2011 Jun; 127(6):1094-101.
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Recognizing a global need for high quality pediatric palliative care. Pediatr Blood Cancer. 2011 Aug; 57(2):187-8.
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Parents' roles in decision making for children with cancer in the first year of cancer treatment. J Clin Oncol. 2011 May 20; 29(15):2085-90.
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Longitudinal Assessment of Symptom Distress in Children with Advanced Cancer: Report of the First 20 Weeks in the Pediatric Quality-of-Life Evaluation of Symptoms Technology (PediQUEST) Study (311-A). J Pain Symptom Manage. 2011 Jan; 41(1):187.
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Successful implementation of a novel state-funded pediatric palliative care program (413-B). J Pain Symptom Manage. 2011 Jan; 41(1):230-1.
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Routine Feedback of Patient-Reported Distress in Children With Advanced Cancer: Provider and Family Satisfaction With the Pediatric Quality of Life and Evaluation of Symptoms Technology (PediQUEST) System (311-B). J Pain Symptom Manage. 2011 Jan; 41(1):187-8.
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Unmeasured costs of a child's death: perceived financial burden, work disruptions, and economic coping strategies used by American and Australian families who lost children to cancer. J Clin Oncol. 2011 Mar 10; 29(8):1007-13.
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Fatigue in children with cancer at the end of life. J Pain Symptom Manage. 2010 Oct; 40(4):483-94.
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Absorbing information about a child's incurable cancer. Oncology. 2010; 78(3-4):259-66.
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End-of-life experience of children undergoing stem cell transplantation for malignancy: parent and provider perspectives and patterns of care. Blood. 2010 May 13; 115(19):3879-85.
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Considerations about hastening death among parents of children who die of cancer. Arch Pediatr Adolesc Med. 2010 Mar; 164(3):231-7.
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Symptoms and suffering at the end of life in children with cancer: an Australian perspective. Med J Aust. 2010 Jan 18; 192(2):71-5.
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Quality of care at the end of life in children with cancer. J Paediatr Child Health. 2009 Nov; 45(11):656-9.
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Peace of mind and sense of purpose as core existential issues among parents of children with cancer. Arch Pediatr Adolesc Med. 2009 Jun; 163(6):519-24.
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Unresolved grief in a national sample of bereaved parents: impaired mental and physical health 4 to 9 years later. J Clin Oncol. 2008 Dec 20; 26(36):5870-6.
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Parents' views of cancer-directed therapy for children with no realistic chance for cure. J Clin Oncol. 2008 Oct 10; 26(29):4759-64.
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Looking beyond where children die: determinants and effects of planning a child's location of death. J Pain Symptom Manage. 2009 Jan; 37(1):33-43.
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Parents' perspective on symptoms, quality of life, characteristics of death and end-of-life decisions for children dying from cancer. Klin Padiatr. 2008 May-Jun; 220(3):166-74.
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Easing of suffering in children with cancer at the end of life: is care changing? J Clin Oncol. 2008 Apr 01; 26(10):1717-23.
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Understanding of prognosis and goals of care among couples whose child died of cancer. J Clin Oncol. 2008 Mar 10; 26(8):1310-5.
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Paediatric palliative care: challenges and emerging ideas. Lancet. 2008 Mar 08; 371(9615):852-64.
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Unresolved Grief in a National Sample of Bereaved Parents. Journal of Clinical Oncology. In Press. 2008.

Hope and prognostic disclosure. J Clin Oncol. 2007 Dec 10; 25(35):5636-42.
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Providing pediatric palliative care: PACT in action. MCN Am J Matern Child Nurs. 2007 Sep-Oct; 32(5):279-87.
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Parental grief after losing a child to cancer: impact of professional and social support on long-term outcomes. J Clin Oncol. 2007 Aug 01; 25(22):3307-12.
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Understanding of prognosis among parents of children with cancer: parental optimism and the parent-physician interaction. J Clin Oncol. 2007 Apr 10; 25(11):1357-62.
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Communication about prognosis between parents and physicians of children with cancer: parent preferences and the impact of prognostic information. J Clin Oncol. 2006 Nov 20; 24(33):5265-70.
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Creating enduring change: demonstrating the long-term impact of a faculty development program in palliative care. J Gen Intern Med. 2006 Sep; 21(9):907-14.
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Early integration of pediatric palliative care: for some children, palliative care starts at diagnosis. Curr Opin Pediatr. 2006 Feb; 18(1):10-4.
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Parent and physician perspectives on quality of care at the end of life in children with cancer. J Clin Oncol. 2005 Dec 20; 23(36):9155-61.
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Teaching and learning end-of-life care: evaluation of a faculty development program in palliative care. Acad Med. 2005 Jul; 80(7):657-68.
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Key factors affecting dying children and their families. J Palliat Med. 2005; 8 Suppl 1:S70-8.
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Caring for the child with cancer at the close of life: "there are people who make it, and I'm hoping I'm one of them". JAMA. 2004 Nov 03; 292(17):2141-9.
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Pain, anxiety, distress, and suffering: interrelated, but not interchangeable. J Pediatr. 2003 Apr; 142(4):361-3.
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Caring for children with advanced cancer integrating palliative care. Pediatr Clin North Am. 2002 Oct; 49(5):1043-62.
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Understanding of prognosis among parents of children who died of cancer: impact on treatment goals and integration of palliative care. JAMA. 2000 Nov 15; 284(19):2469-75.
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Symptoms and suffering at the end of life in children with cancer. N Engl J Med. 2000 Feb 03; 342(5):326-33.
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Suffering in children at the end of life: recognizing an ethical duty to palliate. J Clin Ethics. 2000; 11(2):157-63.
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Stability of attitudes regarding physician-assisted suicide and euthanasia among oncology patients, physicians, and the general public. J Clin Oncol. 1999 Apr; 17(4):1274.
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An 11-year-old boy with severe liver disease, cyanosis, and clubbing. Curr Opin Pediatr. 1994 Jun; 6(3):280-5.
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