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Young-Onset Colorectal Cancer Center Events and Resources for Patients

  • As a young-onset colorectal cancer patient, you're encouraged to learn more and to engage with our community. These events and resources are meant to increase public awareness and education around the rising burden of colorectal cancer in young adults.

    See what we're up to below:

    Young-Onset Colorectal Cancer Center
    Annual Patient and Family Forum

    Boston, MA, March 4, 2023

    On Saturday, March 4, the Young-Onset Colorectal Cancer Center held its 4th annual Patient and Family Forum. It was a day full of free educational events for individuals with young-onset colorectal cancer (diagnosed under 50 years old) and their supporters. Attendees heard from keynote speaker Lindy Thackston, a FOX59 news anchor in Indianapolis, who was diagnosed with stage IV colorectal cancer at the age of 40, as well as from experts in colorectal cancer research, social work, clinical trials, and more. Check back soon for highlight videos.

    Highlights from the 2022 Patient and Family Forum


  • Young-Onset Colorectal Cancer Center Annual Forum Research Keynote
    At the Young-Onset Colorectal Cancer Center's third annual Patient and Family Forum, a Research Keynote lead by Jonathan Nowak, MD, PhD and Benjamin Schlechter, MD, discussed immunotherapy and CAR-T cell therapy in young-onset colorectal cancer.


  • Young-Onset Colorectal Cancer Center Annual Forum Living Well 2022
    At the Young-Onset Colorectal Cancer Center's third annual Patient and Family Forum's Living Well session, Max McMahon, MSW, LCSW lead an open discussion with patient Alexa Morell to discuss their journey through treatment, advocacy, and what it means to truly live well as someone with colorectal cancer.

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  • Young-Onset Colorectal Cancer Center Annual Forum Expert Panel 2022
    At the Young-Onset Colorectal Cancer Center's third annual Patient and Family Forum's Expert Panel session, Dr. Kimmie Ng is joined by the following physicians to discuss some of the most pressing topics in colorectal cancer research:

    Dr. Leah Biller, Germline Genetic Testing in Young-Onset Colorectal Cancer
    Dr. Marios Giannakis, Genomic Profiles of Young-Onset CRC
    Dr. Doug Rubinson, Circulating Tumor DNA and Their Utility in Young-Onset Colorectal Cancer
    Dr. Nikhil Wagle, Count Me In: The Colorectal Cancer Project



  • Young-Onset Colorectal Cancer Center Gut Instincts Series


  • Best Practices for Rectal Cancer
    Dana-Farber’s Young-Onset Colorectal Cancer Center's Gut Instincts series continued on Monday, September 26, 2022, with an educational workshop on Best Practices for Rectal Cancer. Topics included chemotherapy, advances in radiation and its side effects, surgical management of rectal cancer, and a patient's perspective.

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  • Best Practices for Genetic Testing
    Dana-Farber’s Young-Onset Colorectal Cancer Center's Gut Instincts quarterly webinar series for healthcare professionals, patients, and supporters continued on Thursday, June 9, 2022, with an educational workshop on Best Practices for Genetic Testing. Topics included assessing for inherited cancer risk, genetic testing and counseling, management for patients with inherited risk and a patient's perspective.


  • Best Practices for Symptom Management
    Dana-Farber’s Young-Onset Colorectal Cancer Center's Gut Instincts series continued on Tuesday, January 25, 2022, with an educational workshop on Best Practices for Symptom Management. Topics included managing psychological distress, acupuncture benefits, palliative care, and patient reported data. This webinar is for healthcare professionals, patients, and supporters.


  • Best Practices for Screening Young People
    The Young-Onset Colorectal Cancer Center launched a new series of educational workshops, Gut Instincts: A Series on Young-Onset Colorectal Cancer. The first event took place on Thursday, March 4 and focused on Best Practices for Screening Young People.


  • Best Practices for Ostomy Care
    Dana-Farber’s Young-Onset Colorectal Cancer Center's Gut Instincts series continued on Tuesday, June 22 with an educational workshop on Best Practices for Ostomy Care. This webinar is for healthcare professionals, patients, and supporters.


  • Best Practices for Fertility Preservation
    Dana-Farber’s Young-Onset Colorectal Cancer Center's Gut Instincts series continued on Monday, September 27 with an educational workshop on fertility preservation. This webinar is for healthcare professionals, patients, and supporters.



  • Additional Resources


  • Too Young for This Sh*t Webcast - Congressional Families Cancer Prevention Program®
    The Congressional Families Cancer Prevention Program® hosted a live webcast about the rise of early-onset colorectal cancer. Watch the video to hear from Dr. Kimmie Ng, our Center’s Director, and Pat Beauregard, a Dana-Farber colon cancer patient.

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  • Young-Onset Colorectal Cancer Center team members on the Jimmy Fund Walk


    The Young-Onset Colorectal Cancer Center is proud to be the fourth highest fundraising team for the 2021 Boston Marathon® Jimmy Fund Walk: Your Way event, raising $141,901! Thank you to our donors! To learn more or join our team, please visit danafarber.jimmyfund.org/goto/BeyondCRC.

  • Colorectal Cancer: Closing the Disparity Gap
    Dana-Farber patient Kyle Vinson was diagnosed with colorectal cancer at 38-years old and shares his journey. Dana-Farber oncologist, Ben Schlechter, MD, discusses what needs to happen to close the disparity gap as research shows colorectal cancer rates in Black individuals are about 20% higher when compared with non-Hispanic white individuals.


  • Young-Onset Colorectal Cancer Forum
    Watch a video of our first patient and family forum, held on March 7, 2020.
    Viewing guide:
    00:00 Kimmie Ng, MD, MPH: Welcome from the Center Director
    21:30 Marios Giannakis, MD, PhD: Tumor Molecular Profiling and How to Interpret Results
    01:03:10 Research and Care Q&A with Expert Panel
    01:49:25: Patient Keynote with Cancer Owl Matt Mewhorter, LPC