Lynch Syndrome Center Events and Resources for Patients

Contact the Lynch Syndrome Center


Contact the Lynch Syndrome Center


LYNKED IN Lynch Syndrome Patient Conference

LYNKED IN is an annual, one-day educational conference for individuals with Lynch syndrome, their families, and caregivers, hosted by Dana-Farber’s Lynch Syndrome Center. The goal of the conference is to connect and empower Lynch syndrome families. All are welcome!

This program provides attendees with:

  • Updates on guidelines for screening and prevention
  • Strategies for communicating one’s cancer risk with family
  • Information about the latest advances in the treatment of Lynch syndrome
  • Opportunities to connect with other Lynch syndrome families

*This conference is free of charge due to the funds raised by Team Lynch Syndrome. If you are interested in fundraising or joining Team Lynch Syndrome, please visit our Team Lynch Syndrome Jimmy Fund Walk page.

2024 Lynch Syndrome Patient Conference

Saturday, March 23, 8 a.m.–4 p.m.
Hotel Commonwealth, 500 Commonwealth Ave, Boston, MA

Hosted by Dana-Farber’s Lynch Syndrome Center, the free one-day annual LYNKED IN conference for individuals with Lynch syndrome, their families, and caregivers will be held on March 23, 2024 from 8 a.m.–4 p.m. This conference provides attendees with updates and guidelines for screening and prevention, strategies for communicating with family, advances in treatment, and the opportunity to connect and empower Lynch syndrome families. Please register by March 9.

View Event and Register

If you have any questions, or would like information about future conferences, please email us at

View video coverage of presentations from past LYNKED IN conferences:

Online Resources

Patients Helping Patients

Team Lynch Syndrome (formerly Team Sandi) is our Center's team for Dana-Farber's Jimmy Fund Walk, now in its tenth year. Since 2013, Team Lynch Syndrome has raised close to $200,000 for Lynch syndrome research at Dana-Farber. One hundred percent of the proceeds raised by our team directly support Lynch syndrome research and national education efforts to raise awareness of this rare disorder, including funding our annual LYNKED IN Lynch Syndrome Patient Conference.

Team Lynch Syndrome was founded to honor Sandi Braune, a patient of Dr. Sapna Syngal, who passed away from colon cancer in 2003 shortly after discovering she had Lynch syndrome. The team comprises Lynch syndrome previvors (patients who have not had cancer but have tested positive for a mutation in one of the mismatch repair genes that cause Lynch syndrome), Lynch syndrome cancer survivors, non-carrier relatives, friends, and Dana-Farber staff, and is a great way to connect with other individuals with Lynch syndrome.

Dana-Farber's Team Lynch Syndrome in the Jimmy Fund Walk

Support the Lynch Syndrome Center

Your support can help advance research and provide care for individuals with Lynch syndrome, contributing towards:

  • Creating lasting educational materials and tools for the community
  • Hosting Fellows focused on Lynch syndrome patient care and research, to help us mentor and train the next generation of Lynch syndrome experts
  • Launching an interactive, patient-focused website with forums, support groups, event announcements, and news
  • Implementing patient-driven cancer risk assessment tools in clinical practices, so patients can assess their individualized risk for Lynch syndrome via a user-friendly web application
  • Putting together an American Medical Association-accredited physician-focused Lynch Syndrome Conference with educational talks
  • Organizing the annual patient LYNKED IN Conference, started in 2016, where patients can learn about the latest research and clinical management of Lynch syndrome
  • Hiring staff, such as additional nurse navigators to assist and support patients more closely; a program coordinator to support Center operations; and clinical and support staff to manage Lynch syndrome patient clinical care and research study appointments

Naming opportunities for the Center are also still available. For more information, contact Angelle Kettlewell at or 617-632-5027

Living with Lynch Syndrome: Kerry's Story

Kerry talks about the care she receives at the Lynch Syndrome Center at Dana-Farber Cancer Institute.

Living with Lynch Syndrome: Miguel's Story

Miguel talks about the care he receives at the Lynch Syndrome Center at Dana-Farber Cancer Institute.