INSPIRE-AYA: A Multicenter INteractive Survivorship Program to Improve Healthcare REsources for Adolescent and Young Adult (AYA) Cancer Survivors
Trial Description
This trial studies how well an interactive survivorship program works in improving healthcare
resources in adolescent and young adult cancer survivors. By improving access to survivorship
resources, health literacy, self-management skills, and support, an interactive survivorship
program may help to improve adherence to adolescent and young adult healthcare guidelines and
reduce cancer-related distress.
Eligibility Requirements
Inclusion Criteria:
- Diagnosed with a first invasive malignancy of leukemia, lymphoma, melanoma, sarcoma,
breast, thyroid, or colorectal cancer (stage 1-3 for solid tumors) between the ages of
15-39 years
- Current age >= 18 when approached
- Currently within 1 to 5 years from the time of diagnosis
- Completed active treatment for disease >= 6 months previously
- Received a therapeutic intervention (with curative intent if advanced stage disease)
that included any of the following modalities: surgery, cytotoxic chemotherapy,
biological or targeted agents, radiation therapy
- English proficiency adequate to complete assessments
- Access to email and smartphone mobile app and or internet
Exclusion Criteria:
- Diagnosed with a subsequent invasive malignancy other than non-melanoma skin cancer
- Received hematopoietic stem cell transplant
- Health issues prohibiting computer use or ability to comply with study procedures
- Residing in an institution or other living situation where health care decisions are
not made by the participant (e.g., hospitalized, prisoners, living in a rehabilitation
facility)
- Does not complete baseline patient reported outcome (PRO) assessment items required to
determine stratification or whether the survivor meets inclusion and exclusion
criteria