The mission of Parents Together is to provide a space for parents to:
- Create a toolbox of educational and supportive resources to help you manage the challenges a family faces after their child's diagnosis.
- Build connections with other parents who are experiencing similar struggles.
Parents Together is excited to continue our partnership with Momcology®, to bring "Connections: Pediatric Cancer Caregiver Support"© to families in 2022. This group series offers parents an opportunity to connect with others who can relate to the experience of having a child undergo treatment:
May 20, 2023: Navigating Through Change
July 19, 2023: Finding Calm in the Storm
Register for the Momcology series.
You can also check the Dana-Farber Events Calendar for additional programs that may be of interest.
Tip Sheets for Patients, Families, and Caregivers
Online Support and Education
Several online organizations offer opportunities for parents to support one another through groups, one-on-one peer matching, and chat features. Many of these organizations also offer additional opportunities for education about your child’s diagnosis, treatment, and emotional coping. While this is certainly not an exhaustive list, we encourage you to check out the opportunities for support and education through the following organizations:
Caregiver Corner at the Blum Pediatric Resource Room
Our Patient Activities Team hosts the Caregiver Corner in the Blum Pediatric Resource Room at the Jimmy Fund Clinic. This space includes a variety of materials for caregivers to utilize while in clinic or at home, such as crafts, books, journals, workbooks, adult coloring books, and much more.
Resource room staff have also developed a resource guide for pediatric caregivers. Materials focus on four main topic areas and include supports available both at Dana-Farber and from the community. The guide can be picked up at the Blum Pediatric Resource Room or download the packet.
For Caregivers of Young Adult Patients
DF/BCC Young Adult Program: The Young Adult Program (YAP) supports young adults (~ages 18 to early 40s) receiving care for a cancer or blood disorder diagnosis. YAP also provides supportive opportunities for caregivers of this population of patients including:
- YAP quarterly caregiver e-newsletter: highlights various resources and programs available both at Dana-Farber and from the community. Subscribe by emailing firstname.lastname@example.org.
- YAP X (formerly known as Twitter) Conversations:
CancerCare: provides telephone, online and face-to-face counseling and support groups, as well as educational programming and materials. CancerCare runs one 15-week support group specifically for caregivers of adult children. Get information and register.
Elephants & Tea: National non-profit media organization with the mission of connecting young adults and their caregivers via blogs, writing, virtual programming, and other forms of self-expression.
Cactus Cancer Society: National non-profit organization that offers a variety of wellness/supportive programs and resources solely for young adults and their caregivers. Programs include a creative writing workshop, book club, DIY crafts, and opportunities to connect with others virtually.
Stupid Cancer: National non-profit organization that offers both resources and programming for everyone affected by AYA cancer with a special section for caregivers.
Additional Resources to Explore
A Parent's Guide to Surviving Childhood Cancer
American Childhood Cancer Organization
Dana-Farber School Liaison Program
Dana-Farber Sibling Program
For Caregivers of Pediatric Patients
Parents Together has teamed up with Momcology® - a nonprofit support organization that provides national programs and services for primary caregivers of children diagnosed with cancer. Learn more about this exciting new partnership.