Since our inception in 1998, the Adult Patient and Family Advisory Councils (PFAC) have served as a national model for healthcare institutions. By partnering with Dana-Farber Brigham Cancer Center staff members regarding adult patient care, we help improve the patient experience and ensure patient- and family-centered care. The role of a PFAC member is to provide feedback, generate ideas, and offer insight from a patient or family/caregiver perspective. PFAC members may be asked to offer opinions and perspectives based upon their experience with a particular aspect of care, a department, or type of illness. It is important that PFAC members lead with their patient or caregiver perspective, and serve as partners to Dana-Farber staff and leadership.
Requirements and Responsibilities
PFAC members are cancer survivors, caregivers, or family members who have a strong desire to advocate for others. Responsibilities include attending 9-10 monthly meetings in person, serving on 1-2 projects or committees on an ongoing basis, being timely and responsive through email, assisting with speaking opportunities, events, or other volunteer opportunities, and sharing a personal story and patient/family perspective. A PFAC member has full voting rights on the Patient and Family Advisory Council. Voting responsibilities may include nominating and electing Co-Chairs, revising and updating the Bylaws, and making decisions on Council business.
PFAC members commit to:
- Sharing the patient/family experience
- Attending monthly PFAC meetings
- Volunteering 5-10 hours per month on committees and projects
- 6-year term limit on the Council
- Timely and reliable response on correspondences
The PFACs advise on projects and initiatives covering many disciplines across Dana-Farber Cancer Institute in partnership with Institute staff and leadership. The goal is to provide the highest quality of care to our patients and families by advising staff and leadership from adult and pediatric oncology at Dana-Farber and Boston Children’s Hospital.
Participation may be in person, by phone, by Zoom or other electronic means, and may involve a one-time effort or participation in an ongoing project or committee.
Activities may include:
- Weighing in on the design or improvement of a new or existing program, service, policy, or process
- Participation in research
- Legislative advocacy at the state and national level
- Reviewing and providing input on patient education materials
- Reviewing or helping to draft patient and family communications
- Presenting/co-presenting to staff or at a conference or event
- Writing blogs and sharing stories
Questions regarding the Patient and Family Advisory Councils can be directed to email@example.com.
Apply to join our PFACs