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Our Approach to NUT Carcinoma

  • NUT carcinoma is a rare disease that is often resistant to treatment. Unfortunately, there is no Food and Drug Administration (FDA) approved standard treatment or optimal regimen that has been identified for NUT carcinoma. However, patients may still benefit from widely available chemotherapy regimens, radiation therapy, surgery, and/or participation in clinical research trials.

    Personalized Medicine

    Your NUT carcinoma treatment team will develop a personalized treatment plan based on you and your needs. Our specialists work closely together and collaborate regularly to ensure that your care plan offers the best possible outcomes, and that all your needs are met. We encourage you to be actively involved in the decision-making process.

    Treatment Approaches

    Your treatment plan may include:

    • Participation in a clinical trial
    • Surgery
    • Chemotherapy
    • Radiation therapy
    • Combinations of the above

    Clinical Trials

    Dana-Farber/Harvard Cancer Center (DF/HCC) offers one of the largest and most active clinical trial programs available, including trials for people with NUT carcinoma. We support our patients' participation in clinical trials, and for some patients with advanced or recurrent cases of NUT carcinoma, taking part in a clinical trial may be the best treatment option.

    NUT carcinoma is an area of active research and DF/HCC is leading the way in developing new treatment approaches. If you qualify for a clinical trial, your doctor will carefully discuss with you all options and risks associated with the trial.

    For Referring Physicians

    If you are a referring physician and have a patient with NUT carcinoma, we look forward to working with you. Find out more about referring a patient.

    Pathology consultation is also available for help with initial diagnosis of NUT carcinoma via the International NUT Midline Carcinoma Registry.

    The International NUT Carcinoma Registry

    The International NUT Midline Carcinoma Registry works to collect data on patients with NUT carcinoma. This data is crucial for supporting future research and paving the way for scientific discoveries regarding the diagnosis. Patients of all ages from anywhere in the world may participate. For more information or to enroll, please visit the registry website.

    Supportive Resources

    To address all of your physical and emotional needs, we provide a comprehensive range of support services and integrative therapies. Among our many services, we offer individual and family counseling, physical therapy, pain and symptom management, acupuncture, massage, Reiki, and support groups.